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Old 08-26-2010, 04:13 PM #1
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Default New NARCOMS survey

Did any of you get a request to complete their new survey? I did it this afternoon. It was kind of interesting. There were a lot of questions about risks you are willing to take (related to ms treatment) and how you deal with anxiety. I am reevaluating some of my responses I gave now that I have thought about them. Oh well. There were also a few problem solving/math questions at the end.
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Old 08-26-2010, 08:02 PM #2
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It was very interesting. I believe it is for the Cleveland Clinic.
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Old 08-28-2010, 02:27 PM #3
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Yep, I got this new NARCOMS survey in my e-mail. Had trouble loading the site, so I have to go back and try again today to complete it. I've been doing these surveys for years, probably about 8 or 9. Let's hope they help!
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Old 08-28-2010, 07:53 PM #4
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I stopped filling out those intrusive surveys a couple of years ago. I just don't like them and am tired of being used.
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Old 08-28-2010, 09:00 PM #5
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NARCOMS Surveys don't give you the proper options. For example, it asks about relapses and exacerbations, but there is no option for people who have progressive forms of MS who never remitted. I myself cannot tell you how many relapses I have had in the last 2 years because my original symptoms didn't go away. Grrrrrr. research people annoy me
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Old 08-28-2010, 11:43 PM #6
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Yes I got the updated survey and filled it out. I hope it will help somehow on the road to research the cause and treatments of MS.
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