Since my brain stem stroke two years ago this month, I've developed the above disorder. My research revealed this happens to 60% of brain stem and stroke patients. This is another one of those things neuros don't tell you with most patients finding out like me.

I have a great doctor for my sleep disorders since I have sleep apnea and use a CPAP machine to sleep at night also. In reviewing my sleep data, the results look like a DNA sample with no regularity and sleep periods of 2 to 4 hours at a time. Ambien and Lunesent, even narcotics have no impact other than to make me feel like crap.

My sleep wake routine is, no routine at all. Obviously this situation creates sleep deprivation, which a cumulative condition and takes more than one good night's sleep to reset. In addition, I've now been diagnosed with severe depression and am now on Celbrexa(sp). Thus, you now know what I have to deal with on top of the neuro disease symptoms. A multi-front war at the least.

My question, does anyone else suffer from this condition and do you have any hints, tricks, or advice to deal with it?