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Old 02-19-2011, 07:20 PM #1
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Default BetaSeron, Drunk Walking and Burning Skin - Help!

I am new to MS - started BetaSeron in December. Two weeks ago, I had a few days of "Drunk Walking". Called my Neuro and they said it was probably stress related. Symptoms resolved after three days. Last week, my left leg had stabbing pains just about my knee and a burning pain in my upper leg from my knee up. Lasted three days and then I started Steroids. My question is - does this mean that my MS is getting worse? I know the BetaSeron hasn't had much time to start to work, so I am not counting on it to help prevent lesions just yet. I am most concerned that these symptoms occured so close together after having almost no flares for almost a year. Does this sound uncommon to you? Anyone experience this burning and how do you manage the pain?
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Old 02-19-2011, 11:58 PM #2
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I don't have an answer, just wanted to let you know that I'm thinking about you and send hugs
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Old 02-20-2011, 08:26 AM #3
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Stress can trigger many tiny flares, or hiccups in this disease. STarting a new injectable drug IS stressful. Newly diagnosed IS stressful. Learning how to surf in the MS world IS stressful. Finding your balance and place in this stream IS stressful.

now, that being said, alot of MDs will blame stress for your symptoms and give you the "calm down" speach. You have been on the steroids and given a new DMD (disease modifying drug) and are starting to adjust. As you learn this disease, you will learn your body and its new normal.

This disease is like a fingerprint, no two of us have the same run. What stresses you may make me yawn, and what triggers me into a full blown relapse may make you scratch your head.

Clear as mud? I hope you feel better soon.
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Old 02-20-2011, 02:06 PM #4
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It is not uncommon, pretty much some of the 'normal' ups and downs of MS. As said above, you will get used to the stuff and it will become less stressful. A bad day is just another day, tomorrow will be better.
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Old 02-20-2011, 04:59 PM #5
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Quote:
Originally Posted by doydie View Post
i don't have an answer, just wanted to let you know that i'm thinking about you and send hugs
thank you!
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Dejibo (02-20-2011)
Old 02-20-2011, 05:06 PM #6
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Originally Posted by Dejibo View Post
Stress can trigger many tiny flares, or hiccups in this disease. STarting a new injectable drug IS stressful. Newly diagnosed IS stressful. Learning how to surf in the MS world IS stressful. Finding your balance and place in this stream IS stressful.

now, that being said, alot of MDs will blame stress for your symptoms and give you the "calm down" speach. You have been on the steroids and given a new DMD (disease modifying drug) and are starting to adjust. As you learn this disease, you will learn your body and its new normal.

This disease is like a fingerprint, no two of us have the same run. What stresses you may make me yawn, and what triggers me into a full blown relapse may make you scratch your head.

Clear as mud? I hope you feel better soon.
Thank you so much for our support - just realizing that I am not falling apart is so reassuring! Of course I have done a ton of reading and am getting more comfortable with the symptoms and what to look for. I am not so comfortable with the symptoms and how they feel. The burning really threw me for a loop. Many changes at work - new boss etc but they know about my MS and are supportive. Thanks again!
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Old 02-20-2011, 06:43 PM #7
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You will find that MS is a long haul disease. I survived cancer and its glory and its a short sprint. Zoom over the finish line you go! ta da all done. MS is a long haul, in your face, is this the day style disease. I can be perfectly fine when I get out of bed, but by noon be so exhausted I cant grocery shop. I can be horrible when I get out of bed, but by noon be ready to tackle meal prep for the whole week. No two days are ever the same.

Please learn to breathe, relax and realize that while it feels like the world is caving in, as with any wave, it will wash in, and wash out. Hang on!
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Elevated LFTs Beta DC 7/07
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Old 02-20-2011, 09:03 PM #8
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Originally Posted by Dejibo View Post
You will find that MS is a long haul disease. I survived cancer and its glory and its a short sprint. Zoom over the finish line you go! ta da all done. MS is a long haul, in your face, is this the day style disease. I can be perfectly fine when I get out of bed, but by noon be so exhausted I cant grocery shop. I can be horrible when I get out of bed, but by noon be ready to tackle meal prep for the whole week. No two days are ever the same.

Please learn to breathe, relax and realize that while it feels like the world is caving in, as with any wave, it will wash in, and wash out. Hang on!
You are so right - that is exactly how I feel too! Thanks for the words of encouragement and congrats on beating cancer!
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