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Old 02-24-2011, 10:02 PM #1
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Default MS Experts - Please Weigh In!

Last week, I had some days of burning and pain in my upper leg. My neuro put me on steroids - I started them Saturday and finished this morning. Of course I felt great this weekend, but now my leg is painful to the touch but nothing like the burning pain. My question to you MS experts is will the pain eventually resolve or is this just something I have to live with - I have RRMS.
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Old 02-24-2011, 11:54 PM #2
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I am not an MS Expert, but I do know that if the medication does not do the job, you need to tell you physician and have another evaluation.

I wish you the best.
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Old 02-25-2011, 01:38 AM #3
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I really don't believe any of us here are MS experts. Highly qualified and informed patients? Definitely!

The use of steroids is a temporary stop gap measure without and real long term benefit except for repeating the process. You may have a severe localized case of neuralgia (nerve pain) which may be better treated with specific meds including topicals. I have to share this because it's part of my "sick" sense of humor. My first thought when reading your post was, you are so lucky this neuralgia is not on your butt. But again, that's just me.

As with many symptoms of MS, this one may be chronic or come and go. No one really knows the process within each individual. The key is to deal with the symptoms the best you can when they present and keep on going with your life.
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Old 02-25-2011, 03:32 AM #4
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you never know if it'll go away.

In my experience so far, I'll have a symptom like that for a week or three, and then it goes away, usually to come back later in 3 or 4 months or not for a year or two. I usually just ignore the burning symptoms.
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Old 02-25-2011, 04:09 AM #5
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That's the only consistent thing with MS.....it's consistently inconsistent!

Makes me think of what Forrest Gump's mother told him..... but modified for MS. MS is like a box of chocolates. You never know what you're gonna get (or for how long, either).
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Old 02-25-2011, 08:17 AM #6
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Craig, for me, that just begs the question. Do you have neuralgia on the butt. So sympathetic, neuralgia just sucks.

For many weeks, ice-pick stabbing horrible pain in my elbow made it impossible to sleep.
Previously I'd had pains in upper-back shoulder area like a build up of gas or something. Then a pain down my arm to outside of pinkie, then......Well you get it. Doctor gave me me some Vicotin. But, it's been a week or more, painfree, without any meds. I haven't done anything different I'm pretty sure. I'm PPMS, I've never remitted, just steadily progressed. But then pain jumps into equation and then just leaves???

MS. Like snow you never know when it will be, or how long it will last or how deep the pain will be.
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Old 02-25-2011, 11:21 AM #7
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Quote:
Originally Posted by Kitty View Post
That's the only consistent thing with MS.....it's consistently inconsistent!
Sooooooo true!!!

(((((New2MS)))))
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Old 02-25-2011, 11:34 AM #8
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Quote:
Originally Posted by New2MS View Post
Last week, I had some days of burning and pain in my upper leg. My neuro put me on steroids - I started them Saturday and finished this morning. Of course I felt great this weekend, but now my leg is painful to the touch but nothing like the burning pain. My question to you MS experts is will the pain eventually resolve or is this just something I have to live with - I have RRMS.
New2MS - Sorry you are going through this. Steroids are generally used to treat the inflammation going on in the body not necessarily the symptoms. While sometimes this helps with the symptoms, in my experience, it never really resolved the symptoms. Some symptoms eventually went away on there own within a month, others a year, and others are a constant "companion." It is hard to predict when or if the symptoms will resolve.

The best advice I can give you is to give it some time and rest, talk to your neuro about medications for the nerve pain that you seem to be experiencing, and remember that we have all been there and are here to help you through this. Let us know how you are doing.
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Old 02-25-2011, 11:40 AM #9
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Quote:
Originally Posted by kicker View Post
Craig, for me, that just begs the question. Do you have neuralgia on the butt. So sympathetic, neuralgia just sucks.
Please kicker, if you choose to quote me do so accurately. Your version makes me sound like I was being mean and that is NOT the case or ME. So to clarify, however, I reserve the right to be totally wrong in my personal interpretation of your comment:
Quote:
Originally Posted by NeuroNixed Craig View Post
I have to share this because it's part of my "sick" sense of humor. My first thought when reading your post was, you are so lucky this neuralgia is not on your butt. But again, that's just me.
You also know if I did have neuralgia in my butt you would know about it.
Quote:
Originally Posted by kicker View Post
MS. Like snow you never know when it will be, or how long it will last or how deep the pain will be.
Absolutely! I have neuralgia and am very familiar with its symptoms and signs. Only in my case, because of my disease, there is no meds for relief and I do the best I can. Humor helps the situation, well, most of the time.
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Old 02-25-2011, 12:19 PM #10
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Yeah Craig, Kicker is right...it's not nice to call us PITAs..
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