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Old 06-07-2011, 08:42 PM #1
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Default 3 blown veins 2 days of back to back mris 487 pictures of my brain....

And it still has holes. Lolno new ones some of the older ones have grown while my spinal cord continues to shrink. Still losing mass.

After last weeks infusion and mri days and early dismissal for kids and preparing for dd13 to come this weekend, I was going 100 miles a minute when I slammed into that brick wall and it made me stop... and then the tysabri sickness hit and the fatigue and the sinus thing and... it is so bed time!

Dh2b has learned to not use the but you look so good thing with me.now when I look good he doesn't acknowledge it. But if I look like crap or tired or not so hot it is then that he pipes up to let me know. Because I would not know that I was exhausted or sick without you visually confirming it for me.I don't get "honey, are you ok? You don't look so well" instead I get you look like crap. Why don't you go to bed?

Thus proving women with ms do like your false flattery nor your honest observations at our appearance.
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Old 06-07-2011, 08:47 PM #2
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And the Dam Beat goes on..
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Old 06-07-2011, 11:01 PM #3
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i feel your pain. my infusion wiped me out the next 2 days, hit me like a ton o bricks
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Old 06-08-2011, 06:34 AM #4
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Mine does that. I am exhausted for 2 days then I feel better then I get sick the next week. Every time. But its the only thing that has stopped new lesions from popping up on my mri
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Old 06-08-2011, 06:54 AM #5
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Old 06-08-2011, 11:29 AM #6
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Went to PCP today...

The good news is you are sick and the MRI shows no new lesions. The Tysabri is working.... here's an antibiotic. See ya next month.

Oh and there is nothing wrong with my breasts... at least not that they can see or feel, so it is a nerve thing and nothing we can do about it.

But, we may be switching from oral pain meds to a constant patch, at least at night time so that I may be able to sleep for more than 5 hours. He noticed I was a little wonky from lack of sleep.
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