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-   -   Don't understand the hate (https://www.neurotalk.org/the-stumble-inn/172754-dont-understand-hate.html)

jprinz99 07-06-2012 03:30 PM

I blame nobody. The Osbourne family is not required to be the public face and spokesperson of MS, nor are the able to live this in the privacy we were afforded as they are "in the spotlight". I for one, did not get an instruction booklet on how to act or what to think when the MS subject was first broached. I got scared, angry, sad and terrified I would end up in a home all alone. Then after I got my act together I did some research, eliminated the old crap and miracle oils and made a list of questions. But... that is how I am, which is different than you.

Perhaps instead of holding them out as bad examples of how to act or think we should instead hug them tight and educate them to the possibilities of a life with MS.?(not trying to preach, but this was getting to me)

Jules A 07-06-2012 07:31 PM

Quote:

Originally Posted by Snoopy (Post 894925)
As far as MS: Some DO die as a result and/or complications of this disease.

Very true and I will never understand what feels like the staunch refusal to acknowledge just how horrific this disease can be. It isn't about being pessimistic it is the reality for some people. How can we expect anyone to care about raising funds for MS research if our own population insists on down playing this disease?

Personally I believe there is a lot of denial in the MS community and see the over the top protests about MS not being fatal as an example. Some of us absolutely will die from MS or complications directly caused by MS, if someone really wants to split hairs.

My only thought about the statement on the magazine cover is that the truth is Sharon really has no control over how this disease plays out for her son not even with all her devotion, fame or money. :(

Erin524 07-06-2012 07:55 PM

I'd blame the author(s) of the article(s) that were reporting his MS for sensationalizing it with the headlines.

Dejibo 07-07-2012 07:58 AM

They will be on Good Morning America on Monday. Lets see if they have learned better or if it was the magazine that twisted their words to sell copies.

aussiemom 07-07-2012 02:32 PM

I've said it before, I don't have MS, but I do thank you all for letting me be here.

I have received 2 potentially life threatening ds's in my 63 years. One was diabetes. The misinformtion out there is unbelievable. Some think they will be dead tomorrow. It, like so many other diseases, is controllable.

The second, most recent, is breast cancer. The big C. I'm only 2 months into this, and will start chemo Tues. Again, there is a lot of mis information out there, and while I've heard a lot of "my _________ had that" but she died. Like I want to hear that. It's ignorance on the part of the speaker. Same with MS.

The only thing for sure about any disease is 140 years from now, we will be dead from something. Since MS is closest to your hearts, it is understandable how it riles your blood pressure. And I agree that ALL diseases need more research and publicity. Not from Big Pharma either!

Paula Deen did the same with Type 2. She lost a lot of cred. Sharon Osborne could too.


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