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08-04-2012, 06:32 PM | #1 | |||
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Elder
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This one isn't anything like the one I had last week. It was focused on the right side and involved my eye, jaw and everything in between. I went to bed with this one, slept fitfully with it, woke up with it and have had it all day. Headaches do not make good bedfellows. It starts in the back of my neck, hurts to move my head, am slightly nauseated and my stomach hurts. My arms feel lifeless, not numb or unable to use them. I just feel like they have no energy in them at all. I can't concentrate on anything. I have some Lortab but I know how drousy it makes me feel and I don't want that until bedtime. I have been taking Tylenol but I always worry about my liver and I know what my liver enzumes are due to my Avonex so I try to protect my poor liver I guess if this is the same on Monday I will call the doctor.
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"Thanks for this!" says: | Dejibo (08-05-2012) |
08-04-2012, 07:04 PM | #2 | ||
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Senior Member
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Doydie,
I am sorry that you are suffering. Some of this is reminiscent of Trigeminal Neuralgia. Look at the branches of the TN that go behind the eye and see what you think. TN can be constant- I have that lovely variety. Certainly see someone- no need to suffer. And the weather socks. ANN |
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"Thanks for this!" says: | doydie (08-04-2012) |
08-04-2012, 08:04 PM | #3 | |||
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Elder
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I have TN. I take Tegretol for it and it has been well controlled for about 15 years. My initial symptoms of it weren't what I have now but I know it can change.
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"Thanks for this!" says: | ANNagain (08-05-2012) |
08-04-2012, 08:32 PM | #4 | |||
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Elder
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I went and took an extra Tegretol to see if that helps. I am approved for 5 a day and I have been fine with 3 for so many years
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"Thanks for this!" says: | ANNagain (08-05-2012) |
08-04-2012, 08:42 PM | #5 | |||
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Member
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Maybe it's TMJ? Do you have trouble chewing, or clench and grind your teeth? I had it, affected my right arm shoulder head was miserable. Dentist can help, I finally had surgery.
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"Thanks for this!" says: | doydie (08-04-2012) |
08-04-2012, 09:50 PM | #6 | |||
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Elder
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I don't think it is TMJ. I don't do any of those tings. I remember when I first had this many years ago I didn't know whether to go to a dentist, odotonics, eye ear and nose and troat doctor, family doctor or psychiatrist. I decided to start with my own doctor because of how compassionate he always has shown. When he listened to my symptoms he immediately ordered Tegretol and it worked. My neuro said that it was more than likely my first symptom of MS. It's jsut that it was the only one I had at the time.
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08-05-2012, 08:18 AM | #7 | |||
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Elder
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I hate headaches. I suffered horribly for a long time from them. I hope you feel better quickly.
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08-05-2012, 06:45 PM | #8 | |||
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Elder
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Well I took the combination of drugs I found helped me when I had my bad sinus headache. Didn't kow it was sinus at the time. Ambien and Lortab. Slept like a baby. So I tried that last night. Took it at 10:30, I wanted to finish watching the Olympics which was over at 11. Couldn't get to sleep until 3 AM But I did sleep well after that. So I took 2 Tegretol instead of 1 with all my morning meds. Sometimes I think it helped, some times not. Could be a placebo effect. Right now all I can feel is the burning pain in my face. All around my right eye hurts. So now all I am left with is the side effects of the increased dose, the dopiness, dry mouth, draggy. I hate that part. I don't want to increase it to 5/day until I see what the 4/day does. I will call my doctor tomorrow morning. I know I can get in with the nurse practioner tomorrow. It's not that I don't like to see her but nothing takes the place of my wonderful doctor and I still pay the same exact price. I wish I could go to my neuro about it but her policy is that if another doctor first orders a medicine that any issue with that medicine needs to be taken care of by that one. I don't know how she would feel if my family doctor actually wrote a referral to her regarding the Tegrtol.
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"Thanks for this!" says: | ANNagain (08-05-2012) |
08-06-2012, 02:34 PM | #9 | |||
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Elder
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Just got back from seeing the nurse practitioner. I hate that I have to pay the same to see her as seeing the doctor. She agreed with me that it is more than likely TN. So I am to increae my Tegretol to 4/day. Because it is such a neuralgia type pain she said there is an outside possibility that it could be shingles. So I need to watch out for that. She said I could start on medicine but I said I would prefer to treat it as TN for now. I just hate the drunk feeling I will be feeling for several days.
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08-07-2012, 11:02 AM | #10 | ||
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Senior Member
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I'm wondering is you are any better, Doydie?
ANN |
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"Thanks for this!" says: | SallyC (08-07-2012) |
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