Thoughts and prayers continuing...

thanks for the update trish.
it's normal for babies to lose wt the 1st wk of life. even up to 10% put that would be pushing it.

they can do so much with even babies from a therapy standpoint to strengthen their limbs and teach the to eat and suck more effectively.

don't lose hope. prayers are still coming for the baby and family.

Judy - You're right. It's amazing what they can do with little ones now. He is lucky he was born during this time. He does have OT and PT a few times a week (I think my sister said 3 times a week) and my niece and her husband have been working on his limbs as well. They took him off oxygen today and took out his umbilical IV. He's doing well with the feedings and is now taking more food. Hopefully he will be able to get his feeding tube taken out this week. They are still waiting on the ENT, neurologist, and genetic testing results. I haven't gotten anymore updates from my sister but they have been posting updates on his fundraising page. Since they have to stay in hotels and eat all their meals out, my SIL's sister started a fundraising thing to help them with the costs of lodging and food. They believe the baby will be there at least another month.

Thank you all for the prayers for my little grand nephew. It is greatly appreciated.

Thanks for the update, Trish...rays of hope, healing and growth raining down on the baby...

Keeping Baby and you all in my and in my prayers.

The baby had to be put back on oxygen today. He just needs a little extra help with his oxygen. They have been working with him on oral feeding (I'm not sure if it's by breast or bottle) but he doesn't seem to like it much. He'll eventually get it. Once he does they take out the feeding tube out. Still no word from the consults and the genetic testing.

To see pictures of him breaks my heart. You can see that he is not well and yet, I can see improvements.

Ah, the sweet little soul...we all pray for the best for your little angel...

My nephew is doing well. He is gaining weight. The goal is for him to gain at least 30 grams a day. He's been doing more than that. He is now off oxygen, with the exception of when he breastfeds. He still is having trouble with oral feedings so he still has the feeding tube.

Again, thank you for all your prayers.

Thanks again for the update...he sounds like a fighter!!

Thanks Trish. I love to hear good news about the baby. I hope he learns the
feeding ropes soon. Love and hopes for you, Baby, DD and family.