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Old 07-28-2014, 12:25 PM #1
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Default Prayers Needed for New Grand Nephew and Niece and her Family

My niece had her 2nd baby yesterday. He was born 5 weeks early. The baby was not doing well and may have come congenital birth defects and some chromosomal disorder. They sent him by Air Evac to a hospital in Salt Lake City. My sister flew to SLC to be with the baby and I'm sure my niece and her DH will follow as soon as my niece is ok to travel. She had a C-section. Please keep them all in your prayers. Thanks!
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Old 07-28-2014, 12:49 PM #2
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Oh my goodness Trish. That sweet little one is being prayed for right now.
And also for your DN and Family.
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Old 07-28-2014, 01:07 PM #3
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Prayers for them and for you, too. Please keep us informed on the babys condition.
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Old 07-28-2014, 11:57 PM #4
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You know all youhave to do is ask. A new born baby is to innocent to have to born with those kind of challenges.
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Old 08-03-2014, 11:02 AM #5
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Prayers for all...that is so scary!! Please keep us informed of how it's going...
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Old 08-03-2014, 05:09 PM #6
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oh, i'm sorry trish. of course they will be in my prayers.
especially for the little baby as they try to determine what's wrong.

you all are in my prayers and healing wishes coming your way.
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Old 08-03-2014, 07:13 PM #7
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Update . . .My niece was discharged on Monday and her sister-in-law drove her the 3 hours to Salt Lake City to be with the baby. Their 4-year boy stayed with some relatives and just joined his mom, dad, my sister, and other relatives in SLC. He finally got to meet his little brother yesterday. A social worker worked with him for a bit before he met him.

Anyhow, regarding the baby, they took out the breathing tube and he's breathing on his own. He is still on oxygen. He still has a feeding tube and is learning to use a bottle. He had an MRI done and they are waiting for the neurologist to review it and give a consult as there was a little spot on his brain. His chin was not fully developed and I'm not sure if he has any other defects but the ENT doctor is supposed to come do a consult as well. They should hear back this week regarding the genetic testing that they had done. I know at one point my sister mentioned that he had trouble with his range of motion in his limbs but I haven't gotten an update in regards to this. She did say that he is a little wiggle worm and that was a good sign. I'm not sure if he has put on any weight but he was a little over 4 pounds when he was born.

Please keep them all in your prayers. I'll keep you all updated.
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Old 08-04-2014, 08:22 AM #8
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Thoughts and prayers continuing...
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Old 08-04-2014, 06:17 PM #9
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thanks for the update trish.
it's normal for babies to lose wt the 1st wk of life. even up to 10% put that would be pushing it.

they can do so much with even babies from a therapy standpoint to strengthen their limbs and teach the to eat and suck more effectively.

don't lose hope. prayers are still coming for the baby and family.
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Old 08-04-2014, 11:13 PM #10
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Judy - You're right. It's amazing what they can do with little ones now. He is lucky he was born during this time. He does have OT and PT a few times a week (I think my sister said 3 times a week) and my niece and her husband have been working on his limbs as well. They took him off oxygen today and took out his umbilical IV. He's doing well with the feedings and is now taking more food. Hopefully he will be able to get his feeding tube taken out this week. They are still waiting on the ENT, neurologist, and genetic testing results. I haven't gotten anymore updates from my sister but they have been posting updates on his fundraising page. Since they have to stay in hotels and eat all their meals out, my SIL's sister started a fundraising thing to help them with the costs of lodging and food. They believe the baby will be there at least another month.

Thank you all for the prayers for my little grand nephew. It is greatly appreciated.
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