Anyone know how Doydie is? Not been active for 10 days, I'm only recently new to stumble inn but I'm sure 10 days is unusual for her. Just got this gnawing feeling, praying she is alright.

I am really worried as well. It is not like her to not post something for over 10 days. Does anyone have any contact information for her? I sent her an e-mail via NT but haven't heard back from her.

I've been saying extra prayers for both her and her husband as things have been so crazy for them lately.

I don't have any contact info for her and don't even know her last name.

Hopefully someone will come along who knows something. I'm worried about her, too.

I don't have her last name either. I don't think. I know over the years we have done lots of exchange type things. I may have it somewhere.

sorry i don't. it is concerning. i hope she pops up soon.

Guys, I am so sorry. I am fine. My habits have completely changed and Stumble Inn was a desk top in the office habit. I have tried to go to bed much earlier and really don't go back in the office hardly at all. I know there have been times that I have tried to change this habit but some times I fail. I guess this last week was one of them.

My B/P is still a yo-yo, mainly in the high range. My cardiologist tried to put me back on the Hydralazine which sent my B/P really down the poop shoot and made me feel so bad fo several days. I told her I was not going back on that. So she increased the dose of one of my regular drugs. It still stayed high until today when I got up and took it and it was 116/64! I wasn't so sure I was going to like that and sure enough while I was getting my lunch together it dropped to 81/46. So I guess i need to break up my morning 2 pills and take them at two different times.

We had a death here We had our house built in 1978 and the handle on our stove has fallen off. My husbands idea is to duct tape it on, men, but I would really like to get rid of y avocado stove. The only things I will have left of that awful color is all of my counter tops and sink which is getting very chipped.

Had my annual check up with my neurologist yesterday. If you remember, my MRIs have stayed the same since diagnosis in 1997. She has mentioned many times if I should still take my avonex but just said if it ain't broke, don't fix it. So late 2014 I topped it since we were having to pay so much for Charlie's ulcerative colitis treatments. She didn't like it last year but inderstood why. So yesterday she told me that I am probably one of those very few patients that actually have a benign form of MS and probably never needed the Avonex at all. I'll take that.

I have felt well enough I no longer need to use the store scooters to do shopping. In fact it drives me crazy to go with Charlie. I can understand that Charlie has to walk slow with his Parkinson. But his total grazing around the store looking for something sweet to eat. I know we spent 20 minutes walking around the bakery and I am praying the whole time for God to give me strength over those fudge iced brownies, german chocolate brownies, cream cheese iced brownies, no bake cookies. but he ends up finally leaving not buying anything and got a candy bar in the check out lane. We went in to buy carrots, apples and cottage cheese. We came out spending $120 and had burritos, pizzas, duct tape and many other things.

Again, so sorry I left you guys hanging. I do believe we need to need a phone number or some sort of contact info.

I am so, so glad you posted. I have been saying double prayers for you. I am glad you are doing well, for the most part. Your bp this morning was great! I'm sorry it ended up dipping though. Those dips must be so scary for you.

I have not been on a DMD for several years now. I have had some ups and downs but my MRIs are still stable. I am glad to hear that you may have only had a benign MS or CIS. That is good news.

Again, I am so glad you posted and that you are okay!

Doydie!! I'm so relieved you're alright. Thanks for checking in.....you know how we worry here.

I think a phone number list would be great. I hope we can get something organized and those that want to participate can do so.

My doctor said my new normal needs to be in the 140s/70s. So I knew what I got this morning wasn't good for me and then when I started to feel dizzy I knew. So I need to develope a new habit. Charlie takes a pill at 4 PM. I need to take one at that time and him taking one will help me remember to take one also. He has been so worried about me the last month I think it might help him to be the person who makes sure I get that pill at a new time. Now if I can just get him to change his ileostomy bag. I have told him if he could just do it one time so that I can see that he CAN do it. Then I would go back to doing it.

doydie,

I am glad all is okay. Other than Charlie not wanting to change his own bag; how is he doing with the lifestyle changes because of the ileostomy?


Gerry