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Old 04-12-2017, 06:59 PM   #11
Kitty
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Happy Birthday, Cyn! I hope you did something special.
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Old 04-12-2017, 08:29 PM   #12
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Originally Posted by ewizabeth View Post
I was thinking about Sally today, has anyone heard from her? I hope she's doing ok. Didn't she move into assisted living awhile back?

I'm doing ok. I haven't worked since mid-October, and I applied for SSDI and I'm waiting on a response about that.

I'm good for about 2 hours a day, then the rest of the time I pretty much sit in my chair and rest. I sleep 9-10 hours a night. Sometimes I think of trying to work part time but I have so many limiting symptoms that I know that is out of the question.

I wonder if I should try to get Provigil again? When I was taking Vyvanse the insurance denied to cover that. But they all tend to make my blood pressure rise so I don't know about that.

We went out for a nice family dinner on Friday night with our two sons after a nice visit. The whole evening lasted about four hours. I was completely wiped out for two days then. Things like that make me hesitate about working again.

Well it was nice seeing everyone's updates!

Quite a while back, I PM'd Sally. She was not taking to Assisted Living very well and didn't feel up to posting. I think of her often.


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Old 04-13-2017, 02:56 PM   #13
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I have one good piece of news to report. My oldest son is getting married in September!
Congrats!! How wonderful

Wiz...so sorry to hear you quit working...you are such an engaging, interesting person.
Your sxs must have gotten the best of you...
Hope that you can get out and enjoy the springtime...

I should've called the neuro to get provigil before our drive out to Denver tomorrow. I had my nails done today, and fell asleep again as she was grinding the old gel polish off
I fall asleep so easily...at least until I lie down for bed (at least occasionally). All of the fears and thoughts I ignore during the day come to the fore to bother me. I have been doing some centering "exercises" to quiet the mind. It works occasionally...

I think of Sally often. I hope that if she has passed her daughter lets us know...
she always made me laugh.
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Old 04-14-2017, 01:40 PM   #14
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Something fun for me. A few years ago I submitted my DNA to 23andme. As an Ashkenasizi Jew whose family fled Russia in 1927, relatives were probably left behind. Many relatives also emigrated to the USA or to other countries in the early 1900's.

It has been interesting to discover cousins. I received a PM from a possible cousin in Ukraine. After a bit of correspondence, he requested my email address to send a possible photo of my grandparents.

He sent me a well known photo of my family that included me when I was three years old with either my grandmother's or grandfather's handwriting on the back with my father's Russian name, previously unknown to me!

It blew my mind! His English is rudimentary so DH is connecting me with a friend/coworker fluent in English and Russian to help Grygoryia and me correspond.
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Old 04-20-2017, 04:28 PM   #15
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I am still around from time to time, but nowhere near what I used to be. I am just so busy with work, 2nd work, taking care of my mom in the nursing home, etc. I am still working my day job cleaning up environmental messes for the defense department, and a couple of days a week, I teach spinning classes at the gym. I am currently training for the MS150 ride from Houston to Austin weekend after next, and have a 74 mile ride planned for Saturday as a final tuneup before the big day. It will be my 13th MS150, and the 11th since I was diagnosed in 2006. My MRI now says I have "innumerable" lesions, but other than some random fatigue, a few very minor visual issues with heat, and my everpresent hearing issues, I have no physical symptoms to go with them. I am sure at some point the physical side will catch up with what is going on in my brain, but for now I am just making the most out of life and trying to stay fit.
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Old 04-20-2017, 07:57 PM   #16
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Default still A R O U N D I S H...and retired!

thank you for asking. I was lucky enough to be able to retire....it took about one year and a lot of effort & $$$$ but I insist on living happily and hopefully healthily ever after. I'll try to visit more often. I did very much appreciate the early support I received here! no I spend more time on Facebook, linked in, etc...
take care!
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1st symptoms--01-27-08 (blurred vision)
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july 2011-ish....lesions on the spine (at least two!)
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started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
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Old 04-21-2017, 12:06 AM   #17
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TX that is wonderful...you are living life to the fullest!!
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Old 04-21-2017, 08:18 AM   #18
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Remember the bandana we all signed and you took on one of your rides?! Gosh, that was eons ago.....



Quote:
Originally Posted by TXBatman View Post
I am still around from time to time, but nowhere near what I used to be. I am just so busy with work, 2nd work, taking care of my mom in the nursing home, etc. I am still working my day job cleaning up environmental messes for the defense department, and a couple of days a week, I teach spinning classes at the gym. I am currently training for the MS150 ride from Houston to Austin weekend after next, and have a 74 mile ride planned for Saturday as a final tuneup before the big day. It will be my 13th MS150, and the 11th since I was diagnosed in 2006. My MRI now says I have "innumerable" lesions, but other than some random fatigue, a few very minor visual issues with heat, and my everpresent hearing issues, I have no physical symptoms to go with them. I am sure at some point the physical side will catch up with what is going on in my brain, but for now I am just making the most out of life and trying to stay fit.
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Old 04-21-2017, 11:05 AM   #19
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Remember the bandana we all signed and you took on one of your rides?! Gosh, that was eons ago.....
I still have it, and I take it with me every time I go to a meeting or event where there might be other folks with MS. I think I am up to about 40 signatures on it now and it still rides with me to Austin every year.
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Old 04-21-2017, 12:11 PM   #20
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That's awesome!

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Originally Posted by TXBatman View Post
I still have it, and I take it with me every time I go to a meeting or event where there might be other folks with MS. I think I am up to about 40 signatures on it now and it still rides with me to Austin every year.
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