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#31 | |||
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Wise Elder
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Erin - So sorry to hear about the loss of your dad.
![]() ![]() Lots of changes going on with me and I am not at my computer as often as I used to be and use my phone a lot for the internet. It's hard for me to type on my phone and I hate doing so. Anyhow, I moved in with DD25 and my grandson. It's a temporary thing. I had to move as for whatever reason the violence in the neighborhood I was living increased dramatically. There was a shooting right outside my apartment. That was the 3rd shooting in a month and was the final straw. Since I didn't have much left on my lease, I moved in with DD25 and continued paying on my lease until it was up (April). It's just crazy living with a 2-year old. OMGoodness! I am amused by the his ridiculous fits, unless they happen in the morning as they're getting ready to leave and I'm still in bed. Those are not amusing. He's now going through the demanding phase and trying to control everything and everyone. He is learning that that doesn't fly with this grandma. The new nighttime ritual is everyone lays in my bed and we read books. He loves this and if it doesn't happen, he is upset. I have been enjoying being around him and DD25. It's been an adjustment as I am used to my quiet ways, which took me a bit to get used to being alone. I started a new medicine that seems to be working on both the connective tissue disease and the MS. It's been a challenge to get everything figured out and we're still working on it. I still haven't been diagnosed with anything other than some sort of connective tissue disease and MS; although, the neurologist is still unsure about the MS despite having the lesions and symptoms. I love my neurologist and my rheumatologist and they play well together, which is so important to me. That's my quick rundown. I will try to get better at posting now that things are settling down some for me. I do miss coming on here daily and the fun we all had. ![]() ![]() |
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#32 | ||
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Member
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Erin, I'm so sorry about your Dad.
![]() Life has been busy here. My kids are almost teenagers now! ![]() My son is excited to almost be done with grade school. ![]() My whole team of doctors has changed. I absolutely adore my new MS specialist. My primary seems very caring, I'm still deciding if she is the right fit for me. The neuromuscular neurologist seemed very caring and helpful at first. But after he got the results of my genetic testing he completely brushed me off. He's trying to tell me that because I have no known genetic mutation, only about 50% of patients have one, and the nature of my attacks I can't possibly have periodic paralysis. But when talking on a support group for PP my attacks are exactly like many of the patients! So I will talk to my primary when I see her next week and see if she can help me. We're going on a family vacation in two weeks and I can't wait! I know I'll be spending a lot more time resting than I have in the past, but it will be nice to get away! |
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#33 | |||
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Wisest Elder Ever
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Oh, Tricia......you have my sympathy! My granddaghter's are 2 1/2 and boy can they ever throw a fit! And scream! I thought my eardrums would burst! I will eventually live with them but I'm just not sure when. The remodeling construction is creeping by very slowly.
I'm so glad you posted. I've been thinking of you and hoping you were OK. I'm glad you moved. You should be safe. I wouldn't want to live in a place I felt unsafe. Quote:
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. Last edited by Kitty; 06-04-2017 at 06:27 PM. |
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#34 | |||
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Wise Elder
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Kelly - I cannot imagine having two 2-year olds having tantrums. I think I would end up having one too.
![]() Nemsmom - Sometimes a change in your team of doctors is great. Although, I'm sorry the neuromuscular doctor has brushed you off a bit. Would going to the ER the next time you have an episode help? If anything, they could document their observations and findings and the reports can be sent to the neuromuscular doctor. Enjoy your vacation!!! ![]() |
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"Thanks for this!" says: |
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#35 | ||
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Member
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Well, I've been off for a bit, lost my eldest uncle on Monday to a massive heart attack while he was already in the hospital for an infection of the lining of his lungs.
![]() ![]() ![]() I am done with this body sometimes, I swear I'm just going to start calling it Linda Blair ![]() Keep your fingers crossed that the morticians don't try to catch me and toss me into a casket at the funeral service and the groundskeepers at the cemetery don't think I'm some escapee zombie. If you don't hear from me in a week or so it means they probably did, so check the news for warnings about the zombie apocalypse that came to a quick end in Boscawen NH and protect any Irishmen you might know until the hysteria dies down a bit.
__________________
Side Effects: may cause dizziness, drowsiness, bleeding from the brain, heart explosions, alternate realities, brain spasms, and in rare cases temporary symptoms of death may occur. |
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"Thanks for this!" says: | tkrik (05-19-2017) |
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#36 | |||
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Grand Magnate
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Quote:
I taught Emotionally Disturbed Teens and having twins seemed easy next to that. I was very lucky with kids and loved motherhood and kids were really good, we really had no terrible two moments. Everyone brings and has different experiences and interpretations. Kids will be 26(!!!!) soon. Had worked out life with MS,to a degree but aging (62) attacked and really this aging body and stuff and MS, just a bad mix!!
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. Last edited by Kitty; 05-17-2017 at 11:49 AM. Reason: corrected brackets around quoted sentence |
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"Thanks for this!" says: |
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#37 | |||
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Wise Elder
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Starz - I hope you have a nice trip despite the reason for the trip. I hope you start feeling better too.
![]() Kicker - I'm not crazy about this aging stuff either. It seems that after my last surgery (hysterectomy included), the aging process has rapidly sped up!! My body is not happy not only with MS but other ails as well. Half the time I don't know what is what and when something is wrong, I have no clue what doctor to call. ![]() ![]() |
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"Thanks for this!" says: |
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#38 | ||
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Member
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Made it back yesterday, no zombie apocalypse going on
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__________________
Side Effects: may cause dizziness, drowsiness, bleeding from the brain, heart explosions, alternate realities, brain spasms, and in rare cases temporary symptoms of death may occur. |
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"Thanks for this!" says: | ger715 (05-26-2017) |
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