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Old 04-21-2017, 08:18 AM #1
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Remember the bandana we all signed and you took on one of your rides?! Gosh, that was eons ago.....



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Originally Posted by TXBatman View Post
I am still around from time to time, but nowhere near what I used to be. I am just so busy with work, 2nd work, taking care of my mom in the nursing home, etc. I am still working my day job cleaning up environmental messes for the defense department, and a couple of days a week, I teach spinning classes at the gym. I am currently training for the MS150 ride from Houston to Austin weekend after next, and have a 74 mile ride planned for Saturday as a final tuneup before the big day. It will be my 13th MS150, and the 11th since I was diagnosed in 2006. My MRI now says I have "innumerable" lesions, but other than some random fatigue, a few very minor visual issues with heat, and my everpresent hearing issues, I have no physical symptoms to go with them. I am sure at some point the physical side will catch up with what is going on in my brain, but for now I am just making the most out of life and trying to stay fit.
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Old 04-21-2017, 11:05 AM #2
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Quote:
Originally Posted by Kitty View Post
Remember the bandana we all signed and you took on one of your rides?! Gosh, that was eons ago.....
I still have it, and I take it with me every time I go to a meeting or event where there might be other folks with MS. I think I am up to about 40 signatures on it now and it still rides with me to Austin every year.
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Old 04-21-2017, 12:11 PM #3
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That's awesome!

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Originally Posted by TXBatman View Post
I still have it, and I take it with me every time I go to a meeting or event where there might be other folks with MS. I think I am up to about 40 signatures on it now and it still rides with me to Austin every year.
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Old 04-23-2017, 01:59 AM #4
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I've been busy with my ms being annoying, and then there have been several family illnesses that I had to deal with. One of those is over. My father died friday morning.

I'm going through being diagnosed again, I was trying to get a new neuro, and he wanted fresh mri's, and he made a mention that he was suspecting that it was something else. So, I'm having to get a ton of mri's and other things for that. So annoying.
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Old 04-23-2017, 10:52 AM #5
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For those who are concerned about Sally, she's still in a nursing home--and not happy there but there seems to be no alternative just now.

She developed pneumonia a few weeks ago and hasn't been doing well enough to communicate. If I receive any more information, I'll post it here.

I've sent her a note letting her know that people here have been expressing concern and missing her. I'm sure she'll appreciate knowing that she's valued here.
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Old 04-23-2017, 03:24 PM #6
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Erin, I am so sorry to hear about the passing of your Dad. I remember how much you talked about him being a nurse and things he used to do. I really am terribly sorry. I hope you're holding up as well as can be expected. Keeping you and your family in my thoughts.

Quote:
Originally Posted by Erin524 View Post
I've been busy with my ms being annoying, and then there have been several family illnesses that I had to deal with. One of those is over. My father died friday morning.

I'm going through being diagnosed again, I was trying to get a new neuro, and he wanted fresh mri's, and he made a mention that he was suspecting that it was something else. So, I'm having to get a ton of mri's and other things for that. So annoying.
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Old 04-24-2017, 01:25 AM #7
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I'm not doing well. I thought I was, but I'm not really. It was a horrible experience, and now that it's over I'm starting to have another kind of horrible experience. Not sure that I can do it.
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Old 04-24-2017, 10:16 PM #8
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I'm so sorry for your loss Erin.
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Old 04-26-2017, 12:18 PM #9
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Quote:
Originally Posted by Erin524 View Post
I'm not doing well. I thought I was, but I'm not really. It was a horrible experience, and now that it's over I'm starting to have another kind of horrible experience. Not sure that I can do it.
It's never easy to lose someone you love. Is there someone you can talk to.....maybe a close friend or relative? Possibly a therapist? Sometimes it's beneficial to just voice your feelings to someone.

How is your Mom doing throughout all of this? I hope you can find someone to talk to......maybe a neutral third party like a therapist would be helpful.

Please let us know how you're doing, Erin.
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