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Second infusion with ocrevus

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Old 06-23-2017, 11:11 AM #1
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Oh, Jappy, I'm so sorry you had that reaction to it. If you said "no more" nobody could blame you. I hope things get better for you.
I just hate it that this is all we have to choose from.....and that these episodes happen. I begin Gilenya on the 29th of this month and have to be monitored for 6 hours after taking the first dose. It's a little scary, I have to admit, even though I'll be in a medical facility the whole time. MS is rough enough. Why do our only choices for meds have to be such a risk, too??
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Old 06-23-2017, 03:29 PM #2
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Quote:
Originally Posted by Kitty View Post
Oh, Jappy, I'm so sorry you had that reaction to it. If you said "no more" nobody could blame you. I hope things get better for you.
I just hate it that this is all we have to choose from.....and that these episodes happen. I begin Gilenya on the 29th of this month and have to be monitored for 6 hours after taking the first dose. It's a little scary, I have to admit, even though I'll be in a medical facility the whole time. MS is rough enough. Why do our only choices for meds have to be such a risk, too??
I feel we are just a bunch of of people that have a horrible disease that they use to try their poison on. The ER DR. said to me that all ms meds are poison.
You just don't know what to do, who to trust, especially when you find out that all the neuros get a cut for each patient that decides to try whatever med it might be.
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Old 06-25-2017, 12:31 PM #3
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If I had a reaction like that, I wouldn't have another infusion. I'm so sorry.
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Old 06-25-2017, 04:42 PM #4
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I'm sorry to say it but I think we're all just guinea pigs for big pharma. What else can we do?
I haven't been on any DMD for the past couple years and my condition has worsened terribly. Who's to say it wouldn't have even with a DMD? We'll never know. I try Gilenya at the end of the month and if it doesn't work I throw in the towel. I feel like giving up anyway.
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