Go Back   NeuroTalk Support Groups > > >

The Stumble Inn The place for social chat for our M.S. community. The Stumble Inn

A Blast from the Past

Reply
 
Thread Tools Display Modes
Old 08-20-2017, 07:58 PM   #1
msbluis
Junior Member
 
msbluis's Avatar
 
Join Date: May 2014
Location: Georgia, USA
Posts: 82
Default A Blast from the Past

Hello everyone. I'm MsBluIs and I've been MIA for a while, but I thought I'd check in.
I moved to a care home in July, 2014. They never should have accepted me. No one at all knew how to use a patient lift, which I've required for many years. So I trained THEM how to use it.
February 2016, I came back home and I've been here since then.
An update on me: I'm 63 now. Had MS symptoms since 1992 but didn't see a doc about it until '95 when an idiot neuro dx'd me as RR. But I never ever had a remission, just continuous progression.
I changed neuros and he changed my dx to PP after my having gone through 8 years of Betaseron, then Copaxone shots, Novantrone (aka Mitozantrone) for a year and 30% loss of my hair.
So I'm PP for 25 years. Quadraplegic, bed-bound, supra-pubic catheter, Permobil C300, Hoyer Lift, adapted van, etc etc.
Anyway, my right arm still "works" well enough to eat and drink, although even it may be gone in another year.
The bright spot for me is that I'll be fitted for a sleek Permobil F5 Corpus next month. It's much less bulky & it can make me STAND!!
__________________

.

MsBluIs
msbluis is offline   Reply With Quote
"Thanks for this!" says:
agate (08-26-2017), ewizabeth (09-09-2017), Jappy (08-28-2017), PamelaJune (08-31-2017), Snoopy (08-23-2017), Starznight (08-21-2017), TheSleeper (08-21-2017)
Old 08-21-2017, 08:29 AM   #2
Starznight
Member
 
Join Date: Jun 2014
Location: Georgia
Posts: 913
My Mood: A Blast from the Past
Default

Congrats on the new equipment! I've seen those sort of wheelchair/bionics crosses before and they look sooooo cool, not to mention all the increased benefits one gains just from being able to achieve a standing position, I sincerely hope they become the new norm for folks lacking such abilities, they help to alleviated bedsores, improve digestion and the subsequent bowel movements, and improved lung function, not to mention you get to be tall again, not simply staring at the world's hip level . Have fun!!!
__________________
Side Effects: may cause dizziness, drowsiness, bleeding from the brain, heart explosions, alternate realities, brain spasms, and in rare cases temporary symptoms of death may occur.
Starznight is offline   Reply With Quote
"Thanks for this!" says:
ewizabeth (09-09-2017), PamelaJune (08-31-2017)
Old 08-26-2017, 12:16 PM   #3
agate
Member
 
agate's Avatar
 
Join Date: Aug 2006
Location: In my head
Posts: 454
Default

I'm sorry you've been having such a rough time.

Is Ocrevus a possibility for you?

It's always good news when someone is refusing to be defeated, and you're definitely someone who's still in there fighting. Congratulations on the new mobility aid. If it's this, it looks really impressive:

F5 Corpus - Permobil
__________________
MS diagnosed 1980.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10.
agate is offline   Reply With Quote
"Thanks for this!" says:
ewizabeth (09-09-2017), PamelaJune (08-31-2017)
Old 08-31-2017, 07:26 AM   #4
Debbie D
Elder
 
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
Default

Thanks for checking in...wish the docs would come up with a more definitive way to dx MS patients.

Sounds like this new piece of equipment may add to the quality of life...keep us up to date, please!
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With Quote
"Thanks for this!" says:
ewizabeth (09-09-2017), PamelaJune (08-31-2017)
Reply

Tags
changed, home, lift, permobil, supra-pubic

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
a blast from the past! proudest_mama Parkinson's Disease 4 05-17-2013 01:42 PM
Hi guys, a blast from the past Mark Jordan Thoracic Outlet Syndrome 0 08-09-2011 03:11 PM
blast from the past Chemar Computers and Technology 5 05-23-2010 07:09 AM
A blast from the past: mrsD Peripheral Neuropathy 1 02-28-2007 12:33 PM


All times are GMT -5. The time now is 08:23 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy