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Old 07-05-2018, 09:39 PM #1
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I have also been MIA for a long time. Probably longer than a year. Maybe two? I do see some updates of folks on fb. I can't believe I have lived in Texas for almost 4 years. I love my little open plan house that I had built two years ago.

I keep busy hanging out with my sis and family. My niece Anya is going to be in 7th grade. I also go to a senior community center for chair yoga and game night. Also play bunco once a month with a fun group of women.

My MS continues to be stable. I am not on any ms medications and haven't seen a neuro since November 2014. I still use a cane when out and this Texas heat is at times too much, but I feel fortunate to have remained mobile.
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Old 07-11-2018, 11:42 PM #2
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Hi Barb!

It's hard to believe you have lived in TX for 4 years now. Also, it's hard to believe you have lived in your darling house for 2 years. Where does time go?

How is your sister feeling? I think of her often and hope she is doing well.

I have never been to a senior center except for visiting and a little volunteering. Is there an age restriction? I'm not there yet but am probably slower than many of those seniors. I would love to do a game night. I am not a competitive person but socially, games are great and fun.

I am glad your MS is now stable. Mine is as well. Like you, I am not on any MS meds, other than the methotrexate but that for the connective tissue disease but supposedly helps with MS. I have not had an MRI in...in...4 or 5 years now so I don't know if I have more lesions. I am slowing down a lot! The heat is brutal, huh? I hate summer. It seems to last forever!!!! It will be several months before it cools down, if it cools down. Last winter was warm, even hot some days.

Take care and post more often, Barb! I love hearing about your niece, family, and life in Texas.
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Old 07-12-2018, 10:05 AM #3
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Hey there, Barb! Time is just flying by. I can't believe it's been 4 years since you moved.

The MS and The Stumble Inn forums have slowed down so much. I remember when they were the busiest forums here.

I'm glad to hear your MS is stable. I wish mine would slow down a bit. It's been in overdrive for the past 2 years.

I wish some more of the old gang would post here.
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Old 07-12-2018, 12:10 PM #4
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Quote:
Originally Posted by tkrik View Post
Hi Barb!

It's hard to believe you have lived in TX for 4 years now. Also, it's hard to believe you have lived in your darling house for 2 years. Where does time go?

How is your sister feeling? I think of her often and hope she is doing well.

I have never been to a senior center except for visiting and a little volunteering. Is there an age restriction? I'm not there yet but am probably slower than many of those seniors. I would love to do a game night. I am not a competitive person but socially, games are great and fun.

I am glad your MS is now stable. Mine is as well. Like you, I am not on any MS meds, other than the methotrexate but that for the connective tissue disease but supposedly helps with MS. I have not had an MRI in...in...4 or 5 years now so I don't know if I have more lesions. I am slowing down a lot! The heat is brutal, huh? I hate summer. It seems to last forever!!!! It will be several months before it cools down, if it cools down. Last winter was warm, even hot some days.

Take care and post more often, Barb! I love hearing about your niece, family, and life in Texas.
Hi Tricia!

Thanks for starting this thread. I wish more of the old gang would check in here.

I've got an appt. with a new Neurologist on the 24th. I'm hoping he will give me a prescription for LDN. I used to take it and I felt so much better on it. There is a clinical trial in CA that will do a stem cell procedure on you but it's pricey and not covered by insurance. So much out there but just an arms length away.

Tricia, my granddaughters are 3 now. I can barely believe it. Seems like they were babies one day and talking and learning their ABC's the next.

I hate the heat, too. It seems to get hotter here each year and summer seems to last forever. Thank goodness for A/C. As I get older it seems to bother me more.
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Old 07-12-2018, 05:34 PM #5
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I also am MIA, only pop up once in awhile. Miss the old gang. I know we all have so many different reasons for not keeping up, like we used to.

Some have left us to go to the peace in the heavens. I have been a yo-yo with the MS. So many other problems. I have had depression hitting me at times, that I just don't want to do anything.

Sometimes I wonder which is worse at times MS or DEPRESSION !

Love reading all the posts.

Jappy
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Old 07-12-2018, 10:43 PM #6
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Hi Jappy,

I know what you mean, Jappy. Some days are OK......then others are just getting through it minute to minute. Not sure what sets that off. A memory of once being able to do things we'd like to be doing now. Or trying to do something we used to be ale to do and discovering that we're no longer able to do that anymore. Lots of different things happening.

I just try to take each new day as it comes and be appreciative of something......even if it's just the little bird that sings under my window every morning. The other day he wasn't there and I missed him and his little chirping. That showed me I still had things here to enjoy.
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Old 07-14-2018, 07:52 PM #7
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I am one of the "younger" members at the senior center at 61. I didn't go for the first few years that I was here, but joined a TOPS (Take off Pounds Sensinsibly) group that meets there. I met several women through that group and that led to me eventually going there for exercise and game night. I usually play train dominoes and it is just fun. We pretend we are competitive, but we just joking. Through those activities, I have met a few good friends.

My sister is doing well. For those of you who do not know she was diagnosed with esophageal cancer about 2 and 1/2 years ago. She had to go through chemotherapy and radiation and have two thirds of her esophagus and one third of her stomach removed. She had her last scan about 2 weeks ago and is cancer free. She doesn't have to have another one for a year. She was lucky in that she was diagnosed at an early stage. She has issues with side effects from the surgery and treatment but is grateful she is doing so well. She went back to work in January 2017 and is teaching full time. Right now she and her family are on vacation in Maine. They are enjoying the cool weather.

I am in my hibernation stage right now. It is just too hot to go out. I am looking forward to fall which usually doesn't arrive here until late October.
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Old 07-18-2018, 07:10 PM #8
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Kelly - Your granddaughters are only a couple of weeks younger than my grandson, right? They were born in November? I can't quite remember because Debbie had a grandbaby born around the same time too. I'm your little ladies are just beautiful!

I hope you get the prescription for LDN! That would be great. I remember you did well on it but at a certain dosage, right? It would be so nice for you to find something that would help you and LDN is not as expensive as any of the other meds out there, old and new.

Jappy - I think we have all been there with the depression, sometimes mild, sometimes not so mild. We all can understand what you are going through. I haven't had much trouble with depression. But, I recently started taking Allegra. OMGoodness!!! The depression was probably considered mild but to me it was concerning. I would wake up and almost dread the day. It was an awful foreboding type feeling. I did not like it at all. I stopped the Allegra and have been fine ever since. I was only on it for a couple of weeks. It gave me an insight into what people with depression experience, only worse. I am sorry you are struggling with that. We are here for you any time.

Barb - That's awesome!!!! Your sister is very, very lucky they caught it early. I am so glad to hear she is doing so well. I am so glad you went to the senior center and have met some new friends. That makes such a huge difference, especially when you are in a "new" place and live alone. I need to get out more but my driving is so limited. In fact, I got rid of my car and haven't replaced it. It needed way too much work, more than the car was worth. I hope you stay nice and cool in your cute little house.
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