Oh man! I have been so MIA I can't even find myself.

I am rarely on my computer anymore. I really need to get back in the habit of having my cup of coffee and catching up on NT friends.

My oldest daughter (DD28) had her first baby in February. She's a beautiful little one. DD28 ended up having to have an unplanned C-section. She was able to stay home with Reign until she was 2 1/2 months (I think). I have been helping them out for now watching her for a few hours a day. DD goes in really early in the morning (around 6) and my SIL goes in later. So, I only have her for a little bit.

I'm still living with DD26 (almost 27) and my grandson. Wow! Three-year-olds are a trip. I forgot that. It's like living with a little dictator.

My MS is about the same but the connective tissue disease is crazy!!! They've added another medication to help me. So far, it seems to be helping and it helps MS as well. It's like a 2 for 1.

As usual, it's hot in the desert! It's supposed to be around 110 tomorrow. I think I may just melt! I know. I always say that but I never do. It sure feels like it though. I can't imagine what people did before air conditioners.

I'll try to check in more often and get back in to a routine of morning coffee catching up.

Who else has been MIA? Check in if you can.

Don't know if I've been MIA or AWOL, but I thought I'd check in tonight.

Glad to know your new meds are helping, Tricia. So you have a 3yo in charge at your place, eh? hehe! My daughter and family from AZ just left (Utah) today and drove home. Their 2yo was VERY busy!!! Broke a couple of things, kept changing the settings on the electronic dog door, so that the doggies were locked either in or out. Good thing we love 'em!!!

My MS is holding steady, I guess (no flares). Total body numbness continues to progress, but I can still type! I've recently developed a head/neck tremor, but haven't been to a doc for it. My son-in-law asked about it -- he is the first. Even hubby hasn't said anything.

I don't take any meds for MS or pain, so feel very blessed in that regard.

Guess that's it in a nutshell! Thanks for the thread, tkrik.

Hi Twink!!! How are you? I'll bet you had so much fun with the grands from AZ. What a nice cool break for them!!! That is too funny about your 2-year old grandson. It's so typical of them to do stuff like that. I'm sure you are exhausted from trying to keep up with him as well as the other grands that came to visit. How many does your DD have now? 5? 6? I lost track.

I'm sorry to hear that your numbness is progressing. That's the downside of this disease. For me, it's muscle fatigue. I guess it's time for a call in to your neuro about the head tremors. Those are so annoying. I get them occasionally.

We got air conditioning installed on Friday. Yay!!! We had an evaporative cooler, which works great when the humidity is low. Once the humidity increases it's almost useless because it's blowing wet air in to the house. It will be so nice to have a/c this summer. My body will certainly be happy.

I have my granddaughter today. She's peacefully napping beside me; not a worry in the world for little ones like her. She has so much hair!!! Omgoodness! She was born with a full head of long hair. Well, long for a newborn. I'd say her hair is about 4" long in places. It's so fine though that it sticks up all over, especially at the back of the crown. It's like peacock feathers. I sure hope it calms down by the time she starts daycare/school. Kids can be so mean.

I've been trying to do summer fun activities with my grandson. Yesterday, DD26 bought him a Play Doh dentist thing. Wow! Did he ever have a blast playing with that. He spend a couple of hours just playing and playing with it.

I hope you all are having a good day!

I have also been MIA for a long time. Probably longer than a year. Maybe two? I do see some updates of folks on fb. I can't believe I have lived in Texas for almost 4 years. I love my little open plan house that I had built two years ago.

I keep busy hanging out with my sis and family. My niece Anya is going to be in 7th grade. I also go to a senior community center for chair yoga and game night. Also play bunco once a month with a fun group of women.

My MS continues to be stable. I am not on any ms medications and haven't seen a neuro since November 2014. I still use a cane when out and this Texas heat is at times too much, but I feel fortunate to have remained mobile.

Hi Barb!

It's hard to believe you have lived in TX for 4 years now. Also, it's hard to believe you have lived in your darling house for 2 years. Where does time go?

How is your sister feeling? I think of her often and hope she is doing well.

I have never been to a senior center except for visiting and a little volunteering. Is there an age restriction? I'm not there yet but am probably slower than many of those seniors. I would love to do a game night. I am not a competitive person but socially, games are great and fun.

I am glad your MS is now stable. Mine is as well. Like you, I am not on any MS meds, other than the methotrexate but that for the connective tissue disease but supposedly helps with MS. I have not had an MRI in...in...4 or 5 years now so I don't know if I have more lesions. I am slowing down a lot! The heat is brutal, huh? I hate summer. It seems to last forever!!!! It will be several months before it cools down, if it cools down. Last winter was warm, even hot some days.

Take care and post more often, Barb! I love hearing about your niece, family, and life in Texas.

Hey there, Barb! Time is just flying by. I can't believe it's been 4 years since you moved.

The MS and The Stumble Inn forums have slowed down so much. I remember when they were the busiest forums here.

I'm glad to hear your MS is stable. I wish mine would slow down a bit. It's been in overdrive for the past 2 years.

I wish some more of the old gang would post here.

Hi Tricia!

Thanks for starting this thread. I wish more of the old gang would check in here.

I've got an appt. with a new Neurologist on the 24th. I'm hoping he will give me a prescription for LDN. I used to take it and I felt so much better on it. There is a clinical trial in CA that will do a stem cell procedure on you but it's pricey and not covered by insurance. So much out there but just an arms length away.

Tricia, my granddaughters are 3 now. I can barely believe it. Seems like they were babies one day and talking and learning their ABC's the next.

I hate the heat, too. It seems to get hotter here each year and summer seems to last forever. Thank goodness for A/C. As I get older it seems to bother me more.

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I'm part of the MIA crowd. I actually just bounced back over to NT, as my stepmom just dropped some MG news about her own health to me. Discovered over an eye droop and said that because she swims so regularly that other symptoms that define MG had gone unnoticed. She's about to have her hip replaced, so it sounds like she got a full work up of testing done beforehand.
I'm med free and lord willing in remission still.
The boys keep getting taller and taller. My poor DS2 his pants look ready for a flood, how quick that happened. We are all on summer break until the end of next month.

Everyone seems in good spirits over here at least.

My youngest, DS3 was up early but then DS1 said he was out cold on the floor. So in the spirit of good fun, I grabbed each pet hamster for photo ops. The first was the KO. Then at some point DS3 had relocated to the couch, flopped over sitting up and out came the other hamster for a pic saying that Team Rocket(hammys name) had carried DS3 to the couch after the KO. Silly, for sure, but fun times.
The three had stayed up super late watching movies, Fantastic Four and one other one--I said good night at that point

I'm just enjoying the AC. The last 3 summers here I braved open windows and fans. This year I said oh no...AC or bust.

Sent from my LGMS631 using Tapatalk

Good to hear from you GladysD. I remember when your boys were just little guys. Times flying.

I've been MIA for the past couple of days. I have developed lymphedema in my lower legs and it's been giving me a time of it. Blisters forming and then weeping so I have to have them wrapped each day by a visiting nurse. She's nice and we both enjoy the company and time to chit chat while she's wrapping but I'd enjoy it much more over a cup of coffee or lunch.

If it's not one thing it's another. But I can't complain. I've got too much to be thankful for to dwell on the road blocks that pop up from time to time. They just remind me of the good things in my life.

Tricia, the grandbabies are so much fun but they aren't really babies anymore. Where did the time go? Just to hear them talking is such a joy. Whenever Evelyn comes in my door she announces herself like we haven't seen each other in years. "Gramma, I'm HERE!! I came to see you!" All the while she's charging through the door and throws herself on my lap (Ouch!!) with a huge hug. That will never get old but I know it will change so I'm enjoying it while it lasts. Never thought I could love two little girls as much as I love my own two boys. But it's possible!

GladysD - It's so good to hear from you! Your boys are growing up so fast! I hope you all enjoy the rest of your summer before heading back to school. AC is a must!!! How did you survive without it. Anything over 75 degrees starts getting really uncomfortable for me.

Kelly - How cute!!!! Evelyn sounds like such a little darling! I'm sure her sister has big hugs for you as well. I'm sorry about the lymphedema. Is there anything else they can do for it?

Nothing new to report here. It's hot as heck out in the desert. It was awfully hot today. My grands are keeping me busy. I do enjoy them. At the end of the day, I am beat! I'm not sure how I did it when they were little. Of course, I was younger and didn't have MS that we know of and I'm sure that makes a huge difference. I sometimes think of all the young moms out there will little ones trying to manage MS at the same time. My heart really goes out to them. I am so thankful it all hit when my girls were in their teens and far more independent.

I hope you all are doing well and enjoying your summers and keeping cool!