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Old 06-21-2018, 03:58 PM   #1
tkrik
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Oh man! I have been so MIA I can't even find myself.

I am rarely on my computer anymore. I really need to get back in the habit of having my cup of coffee and catching up on NT friends.

My oldest daughter (DD28) had her first baby in February. She's a beautiful little one. DD28 ended up having to have an unplanned C-section. She was able to stay home with Reign until she was 2 1/2 months (I think). I have been helping them out for now watching her for a few hours a day. DD goes in really early in the morning (around 6) and my SIL goes in later. So, I only have her for a little bit.

I'm still living with DD26 (almost 27) and my grandson. Wow! Three-year-olds are a trip. I forgot that. It's like living with a little dictator.

My MS is about the same but the connective tissue disease is crazy!!! They've added another medication to help me. So far, it seems to be helping and it helps MS as well. It's like a 2 for 1.

As usual, it's hot in the desert! It's supposed to be around 110 tomorrow. I think I may just melt! I know. I always say that but I never do. It sure feels like it though. I can't imagine what people did before air conditioners.

I'll try to check in more often and get back in to a routine of morning coffee catching up.

Who else has been MIA? Check in if you can.
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Old 06-25-2018, 12:44 AM   #2
Twinkletoes
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Don't know if I've been MIA or AWOL, but I thought I'd check in tonight.

Glad to know your new meds are helping, Tricia. So you have a 3yo in charge at your place, eh? hehe! My daughter and family from AZ just left (Utah) today and drove home. Their 2yo was VERY busy!!! Broke a couple of things, kept changing the settings on the electronic dog door, so that the doggies were locked either in or out. Good thing we love 'em!!!

My MS is holding steady, I guess (no flares). Total body numbness continues to progress, but I can still type! I've recently developed a head/neck tremor, but haven't been to a doc for it. My son-in-law asked about it -- he is the first. Even hubby hasn't said anything.

I don't take any meds for MS or pain, so feel very blessed in that regard.

Guess that's it in a nutshell! Thanks for the thread, tkrik.
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Old 06-25-2018, 12:38 PM   #3
tkrik
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Hi Twink!!! How are you? I'll bet you had so much fun with the grands from AZ. What a nice cool break for them!!! That is too funny about your 2-year old grandson. It's so typical of them to do stuff like that. I'm sure you are exhausted from trying to keep up with him as well as the other grands that came to visit. How many does your DD have now? 5? 6? I lost track.

I'm sorry to hear that your numbness is progressing. That's the downside of this disease. For me, it's muscle fatigue. I guess it's time for a call in to your neuro about the head tremors. Those are so annoying. I get them occasionally.

We got air conditioning installed on Friday. Yay!!! We had an evaporative cooler, which works great when the humidity is low. Once the humidity increases it's almost useless because it's blowing wet air in to the house. It will be so nice to have a/c this summer. My body will certainly be happy.

I have my granddaughter today. She's peacefully napping beside me; not a worry in the world for little ones like her. She has so much hair!!! Omgoodness! She was born with a full head of long hair. Well, long for a newborn. I'd say her hair is about 4" long in places. It's so fine though that it sticks up all over, especially at the back of the crown. It's like peacock feathers. I sure hope it calms down by the time she starts daycare/school. Kids can be so mean.

I've been trying to do summer fun activities with my grandson. Yesterday, DD26 bought him a Play Doh dentist thing. Wow! Did he ever have a blast playing with that. He spend a couple of hours just playing and playing with it.

I hope you all are having a good day!
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Old 07-05-2018, 10:39 PM   #4
barb02
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I have also been MIA for a long time. Probably longer than a year. Maybe two? I do see some updates of folks on fb. I can't believe I have lived in Texas for almost 4 years. I love my little open plan house that I had built two years ago.

I keep busy hanging out with my sis and family. My niece Anya is going to be in 7th grade. I also go to a senior community center for chair yoga and game night. Also play bunco once a month with a fun group of women.

My MS continues to be stable. I am not on any ms medications and haven't seen a neuro since November 2014. I still use a cane when out and this Texas heat is at times too much, but I feel fortunate to have remained mobile.
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Old 07-12-2018, 12:42 AM   #5
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Hi Barb!

It's hard to believe you have lived in TX for 4 years now. Also, it's hard to believe you have lived in your darling house for 2 years. Where does time go?

How is your sister feeling? I think of her often and hope she is doing well.

I have never been to a senior center except for visiting and a little volunteering. Is there an age restriction? I'm not there yet but am probably slower than many of those seniors. I would love to do a game night. I am not a competitive person but socially, games are great and fun.

I am glad your MS is now stable. Mine is as well. Like you, I am not on any MS meds, other than the methotrexate but that for the connective tissue disease but supposedly helps with MS. I have not had an MRI in...in...4 or 5 years now so I don't know if I have more lesions. I am slowing down a lot! The heat is brutal, huh? I hate summer. It seems to last forever!!!! It will be several months before it cools down, if it cools down. Last winter was warm, even hot some days.

Take care and post more often, Barb! I love hearing about your niece, family, and life in Texas.
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Old 07-12-2018, 11:05 AM   #6
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Hey there, Barb! Time is just flying by. I can't believe it's been 4 years since you moved.

The MS and The Stumble Inn forums have slowed down so much. I remember when they were the busiest forums here.

I'm glad to hear your MS is stable. I wish mine would slow down a bit. It's been in overdrive for the past 2 years.

I wish some more of the old gang would post here.
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Old 07-12-2018, 01:10 PM   #7
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Quote:
Originally Posted by tkrik View Post
Hi Barb!

It's hard to believe you have lived in TX for 4 years now. Also, it's hard to believe you have lived in your darling house for 2 years. Where does time go?

How is your sister feeling? I think of her often and hope she is doing well.

I have never been to a senior center except for visiting and a little volunteering. Is there an age restriction? I'm not there yet but am probably slower than many of those seniors. I would love to do a game night. I am not a competitive person but socially, games are great and fun.

I am glad your MS is now stable. Mine is as well. Like you, I am not on any MS meds, other than the methotrexate but that for the connective tissue disease but supposedly helps with MS. I have not had an MRI in...in...4 or 5 years now so I don't know if I have more lesions. I am slowing down a lot! The heat is brutal, huh? I hate summer. It seems to last forever!!!! It will be several months before it cools down, if it cools down. Last winter was warm, even hot some days.

Take care and post more often, Barb! I love hearing about your niece, family, and life in Texas.
Hi Tricia!

Thanks for starting this thread. I wish more of the old gang would check in here.

I've got an appt. with a new Neurologist on the 24th. I'm hoping he will give me a prescription for LDN. I used to take it and I felt so much better on it. There is a clinical trial in CA that will do a stem cell procedure on you but it's pricey and not covered by insurance. So much out there but just an arms length away.

Tricia, my granddaughters are 3 now. I can barely believe it. Seems like they were babies one day and talking and learning their ABC's the next.

I hate the heat, too. It seems to get hotter here each year and summer seems to last forever. Thank goodness for A/C. As I get older it seems to bother me more.
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Old 07-12-2018, 06:34 PM   #8
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I also am MIA, only pop up once in awhile. Miss the old gang. I know we all have so many different reasons for not keeping up, like we used to.

Some have left us to go to the peace in the heavens. I have been a yo-yo with the MS. So many other problems. I have had depression hitting me at times, that I just don't want to do anything.

Sometimes I wonder which is worse at times MS or DEPRESSION !

Love reading all the posts.

Jappy
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Old 07-12-2018, 11:43 PM   #9
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Hi Jappy,

I know what you mean, Jappy. Some days are OK......then others are just getting through it minute to minute. Not sure what sets that off. A memory of once being able to do things we'd like to be doing now. Or trying to do something we used to be ale to do and discovering that we're no longer able to do that anymore. Lots of different things happening.

I just try to take each new day as it comes and be appreciative of something......even if it's just the little bird that sings under my window every morning. The other day he wasn't there and I missed him and his little chirping. That showed me I still had things here to enjoy.
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Old 07-14-2018, 08:52 PM   #10
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I am one of the "younger" members at the senior center at 61. I didn't go for the first few years that I was here, but joined a TOPS (Take off Pounds Sensinsibly) group that meets there. I met several women through that group and that led to me eventually going there for exercise and game night. I usually play train dominoes and it is just fun. We pretend we are competitive, but we just joking. Through those activities, I have met a few good friends.

My sister is doing well. For those of you who do not know she was diagnosed with esophageal cancer about 2 and 1/2 years ago. She had to go through chemotherapy and radiation and have two thirds of her esophagus and one third of her stomach removed. She had her last scan about 2 weeks ago and is cancer free. She doesn't have to have another one for a year. She was lucky in that she was diagnosed at an early stage. She has issues with side effects from the surgery and treatment but is grateful she is doing so well. She went back to work in January 2017 and is teaching full time. Right now she and her family are on vacation in Maine. They are enjoying the cool weather.

I am in my hibernation stage right now. It is just too hot to go out. I am looking forward to fall which usually doesn't arrive here until late October.
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