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Old 10-16-2018, 08:24 PM   #1
Starznight
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So Iíve decided to embrace some of the quirkier side of MS, those moments that probably would never come about if not for my having MS, and yet are the things that can give you something to laugh about for as long as you can remember them , and should you start to forget you know someone close to you will remind you about... that time.....

So the other night my wonderful DH decided it would be a great treat to dress up a bit and go out for a nice dinner. Itís been awhile, but I have new headphones to block all the little dings, clinks and various other obnoxious sounds one meets in a restaurant that for myself ends in a migraine and grated nerves. So off to the shower we go, and not only have I picked out a nice classy blouse to wear but I decide yeah Iím feeling great despite the warmer shower, letís wear a bit of makeup.

Put on the moisturizer that acts as my foundation, a few pats of powder, a little swipe of blush, now on to the lips, now as most girls will know getting a nice lipstick comes from a good lip liner... what I accomplished with my shaky numb hand was not a good lip liner but hey thatís what make up remover and q tips are for, so after cleaning up the clown look, a few taps of the lipstick and no one would ever know. And I made a mental note to skip the eyeliner after that. So a few flicks of eyeshadow looking decently done enough, and then applied my lash ink, but hmmm the eyes are still missing something... eyeliner... what was I thinking putting the lash ink on first, and some might have already figured out roughly where the liquid eyeliner was going....

Yep directly stabbed into my tear duct. ... now that is not something q-tips and makeup remover can fix as Iím crying black tears out one eye, and itís leaving a black stain from the lash ink that isnít going to wash off for the next day or two. So I rinse out as much of the gunk as I can, leaving the tear duct clear but the eye looking like the nose of the clown whose lips Iíd drawn earlier.

Whatís a girl to do? My answer was to leave the black tear stain, slip on an eye patch and trade my nice blouse out for a striped t-shirt and a quick swap from a pretty pink lipstick to black.

And that is how MS mischief turned me into a goth pirate for a day . Dinner was still great and our waiter asked if my DH I are were enjoying getting ready for Halloween.
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Old 10-23-2018, 01:58 AM   #2
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Memory is a thing, made worse when your immune system is eating your brain. Iíve never had the best short term memory, and after last night it is a small wonder my house is still standing. Now normally because of my squirrelly brain I am not allowed to cook, my DH does the cooking, but he worked really late and was very sore owing to a fall from an attic at work. So with him home he decided I could handle boiling water on the stove for some pasta for dinner.

So I filled the pot with water, added some salt and turned on the burner. As they say a watched pot doesnít boil, so I sat down in the living room, and completely forgot I was boiling water, my DH exhausted from work had fallen alseep in his chair watching tv, and I sat there with a grumbling stomach not wanting to disturb him to make us dinner all the while the pot on the stove was boiling away losing more than 3/4s of itís water before the DH woke up, apologized for sleeping and asked if I put away his pasta.

What pasta???... eek... well at least we caught it before all the water was gone. So I decide ok... pasta is out now, I know Iíll make up a frozen pizza, after all our oven has an annoying beep after it preheats... that will tell me Iím good to go, right! Well no... I had zoned out and completely missed the beep, so my oven was preheated for almost 2 hours before the DH questioned me again about dinner.... what dinner??? We didnít eat dinner??? (by now my stomach had given up the ghost of it ever getting food again...)

DH reminded me I was making pizzas... eeeeek... I open the oven door to a billow of smoke as one of our cast iron pans was still in there after getting seasoned. Thankfully there was no flames, so I pulled out the pan got the pizzas into the oven and set the timer on the oven, the microwave, the fridge, my phone and set timers to go off on our Alexa dots.

When the pizzas were done it was loud in the house with all the alarms going off, but they were cooked right

Needless to say, DH has once more enacted a cooking ban on me and is questioning the safety of my making toast even
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Old 10-29-2018, 12:54 AM   #3
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Sometimes even the DH can be slow to learn from history... a few months back he came home from work with his watch broken, decided we would run down and get him a new one. It took, according to him, ten conversations about why we were going to the store before I finally stopped having the same conversation with him. And still I forgot once we were in the store as to why we were there. Granted that was a bit more extreme forgetfulness owing to having just woken up when he came home from lying down with a mother of all migraines, so the brain really was more dazed than usual, but still my memory, particularly in the short term is crap.

So this afternoon we decided to go food shopping, now I always have a list, itís very important when you canít even remember which aisle you just came out of, and I always hand my list to the DH as I canít be trusted. And the DH always reads the list as he is the one who can remember things. It is a system that works, until today when the DH decided he ďknewĒ what we needed from the store and didnít need the list. He rattled off what he thought was a simple enough list, as it was only a few items we needed.

We got to the store and he turned to me to verify his list... uh, sure.... and asked me the whole time could I think of anything else... Nope... so what should have been a 20 minutes at best shopping trip, became an hour and a half, and what should have been a $50, trip became a $200 trip and when we got home we still hadnít bought a single thing from the ďlistĒ that we needed including the all important toilet paper .

In conclusion if you have a system that works... DONT mess with it
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Old 11-04-2018, 12:00 PM   #4
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More MS shenanigans Saturday we are expecting a wound specialist nurse to deal with bed-sore developed my non-moving and aided by Ambien non-movement. We have been told to expect this person.

Person shows, DH helps me lie on bed in my diaper to show how he positions me, show person bed-sore. Person agrees it is bad and nothing else. Turns out he was sent in error to take my blood pressure! But DH had already whispered and made me laugh "What a waste this is!" Think we totally confused this guy who just wanted to take a blood pressure reading!
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Old 11-07-2018, 07:25 PM   #5
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Originally Posted by kicker View Post
More MS shenanigans Saturday we are expecting a wound specialist nurse to deal with bed-sore developed my non-moving and aided by Ambien non-movement. We have been told to expect this person.

Person shows, DH helps me lie on bed in my diaper to show how he positions me, show person bed-sore. Person agrees it is bad and nothing else. Turns out he was sent in error to take my blood pressure! But DH had already whispered and made me laugh "What a waste this is!" Think we totally confused this guy who just wanted to take a blood pressure reading!
Kicker, maybe he should have taken HIS blood pressure after your little show-and-tell episode!!
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Old 11-08-2018, 11:58 AM   #6
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He did ask for a chair.
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Old 11-16-2018, 06:46 PM   #7
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My poor uncle went in for heart surgery, since he was unmarried my mother (his big sis) and I went down for moral support. I had an exaspťration of my MS so I was using my wheelchair, sitting in the pre-op room with him for them to get his weight and draw blood and all that fun stuff. Well the nurse didnít see us enter the room so she came in, greeted all of us and got my uncleís vitals, drew his blood and then said sheíd need to get his weight.

She saw me in the wheelchair and my mom sitting on the only other chair in the room and looked at my uncle who only had one leg sticking out from his robe. She looked really confused for a moment, and then very politely asked my uncle if he could stand on the scale on one foot. My uncle was very good natured as he said ďSure I can, but wouldnít it make more sense to use two?Ē As he untucked his other leg from under him where he was keeping it warm.

The poor nurse turned several shades of white to red, white from trying to catch him when he went to stand up right on through to red when she realized her mistake. But it really did lighten the mood of what ended up being an even bigger operation than intially thought, he was only supposed to have a bypass, maybe a double and it turned into a triple .
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Old 11-27-2018, 11:55 PM   #8
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Well this afternoon must have been a day for mischief indeed, as is our annual tradition my mother and I were working on making our holiday crafts for presents. I was working on an ohio star quilt for my father in law. My mother heard some French coming from my side of the kitchen and asked what was wrong... i told her the light went out on my machine, couldnít see a thing, and with a grumble I got up to get a flashlight and my screwdriver. Ignoring the fact that my mother was still asking me what I was talking about.

I have a tool chest in the living room, joke between my DH and me, but regardless I grabbed the flashlight from the upper left drawer, and grabbed the screwdriver out of the bottom right drawer of the top of the chest and still muttering because weíre getting down to the wire now, I retake my seat at the sewing machine and flip on the flashlight... a few more French words fly from my mouth... the dang batteries are dead.... grrr... grumble.... grrrr....grrrr.....

By now my mom is beside asking why on earth I have the flashlight and screw driver and why am I so upset? Sheís trying to nudge me out of the way thinking I jammed fabric or something in the machine. So I tell her the light went out on my machine, like seriously canít see a thing and now the flashlight doesnít work either and I donít have time for this....

She proceeds to tell me that both are on.... ďwhat??Ē No they arenít, geez, canít she see how dark it is? I get ďlove, both of them are on I see the lights...Ē ďno they arenít itís like pitch black heck I canít even see my own hand in front of my face let alone sew...Ē and no sooner did I say that then I could start to see some light.

Eventually my vision cleared and I could see well as fine as I do any other time, thankfully I was too distracted by projects to realize I had quite literally blindly gone to the living room and grabbed a flashlight and screwdriver never realizing I was actually blind at the time . And worse that it was the middle of the day and it never clicked in my mind that there was no sunlight coming through the windows lol.

And no I didnít go to the Er, allergic to cortisone which is the only treatment, but I did finish the quilt top
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Old 12-10-2018, 08:18 PM   #9
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Well sometimes itís good to have a waiter that knows you . Our waiter tonight was someone who was in a few of my college classes, and an unfortunate victim of my pencil projectiles when my hands would spasm. Funny enough that throughout my college career by the third day of classes my classmates were always on the look out for incoming leaded missiles, but tonight I was just thankful that of all the things my hand decided to suddenly toss was my spoon and not my knife . And since my waiter knew me, he expertly caught the spoon before it could hit the oblivious diner behind me.

My poor DH looked on in abject horror as my fingers flipped the spoon up into the air and was shocked when the waiter smooth as could be caught the spoon and handed it right back to me with a chuckle. We had to explain to my DH that we had been classmates and in apology for the number of pencils that flew his way during class I tutored him. And when he brought our steaks out he was nice enough to ensure my plate was set in front of my DH to cut it, and did so very nicely so as to not attract attention from the other diners that sharp implements would not be my friends tonight .
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Old Today, 01:48 AM   #10
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Ugh, this is a mischief I could do without, but oddly makes me feel like Iíve accomplished something.... years and years ago (gosh do I feel old now) I would get sudden shin splints. Appearing out of nowhere popping like eggs up on shins that would bruise and swell and last for months and then the swelling would go down and Iíd have a dent in my shin for another month or two before the whole cycle would begin again. The only thing that stopped them from occurring was... breaking my back and tearing multiple tendons and ligaments in my ankles and knees to the point of walking more than around the house became nearly impossible, but hey at least no more shin splints the plague of my existence since age 6.

Then last year, I finally had enough with the spasms and rigidity and bit the bullet on getting the baclofen pump. By then most days even getting around my house was a challenge most days, and I used my wheelchair pretty much exclusively whenever I left the house, honestly I didnít think there was any more harm a surgical oops could do at that point. And thankfully there was no oops, aside from an allergic reaction to the pain meds immediately following the surgery and over the weekend which left me feeling the full pain of 21 stitches for 48 hours until my doctors office opened on Monday.

A month later the pump got filled for the first time, and I spent two weeks on a diet of devil dogs and marshmallows due to plummeting blood sugar, they took me off the gabapentin to fix that, and I was basically off to the races. My body was listening to me again. The tearing of the tendons and ligaments actually had a chance to heal some and each day I was able to do so much more than the day before. I healed up enough for the start of spring to get my garden in order, by April my wheelchair was all but put away , Iíve lost 4 dress sizes, helped my uncle with some deconstruction of an old trailer on his lot, took my grand baby to the zoo and actually walked all around with her (ok Nama needed a long soak and slept for a day and a half afterwards but still).

Needless to say I WAS feeling better than I have ever felt in my life, and then last week the dreaded shin splints made their valiant return and as it is 1:30 in the morning and Iím writing this rather than tucked up sleeping soundly, I can say they have definitely returned with a vengeance. Drawing me from my slumber last night with a sudden and exceptionally sharp pain searing itís way up and down my shin bone with every tiny movement.

I know I should feel a bit discouraged, even perhaps worried over this new pain, and yet I find myself chuckling even as I gasp in pain, because it really does feel now like I got my old life back. Rather sad, Iíll admit, but seriously from age 6 to age 27 shin splints were my near constant companion, never once deterred by any amount of physical therapy and to have them back again... well itís like meeting that weird cousin no one ever talks about at a family reunion and feeling slight relieved to know heís alive still so you wonít be called on to offer your condolences over his passing, and yet spend the rest of the time avoiding eye contact at all costs while offering fevered prayers to the powers that be that they never come over to talk to you.

Okay maybe not the best analogy but give me a break, itís going onto 2 am on my second day of little sleep
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