Go Back   NeuroTalk Support Groups > > >

The Stumble Inn The place for social chat for our M.S. community. The Stumble Inn

Well I'm Back....Not 100% But I'm Here

Reply
 
Thread Tools Display Modes
Old 06-22-2019, 10:24 AM   #1
Kitty
Moderator
Community Support Team
 
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,573
Default Well I'm Back....Not 100% But I'm Here

Back in May (5/8) I went to the hospital for a SEVERE MS exacerbation. They also uncovered a pretty bad UTI. They decided to admit me and it ended up being for 10 days.

They kept me in bed for 10 days even though I begged to get out of bed just to stand. I kept telling them I wouldn't be able to walk if they kept me in bed that long without letting me a at least stand up.

Just as I suspected when they discharged me I could not walk. I had to go to a rehab for PT (5/17) . They (PT) discharged me (6/17), too, and I still could not walk!

The AL took me back but is now telling me that I need an additional care and it's going to cost me $2,068 more per month!!

I don't know what's going to happen but I don't have that much extra money each month. They are talking like I'll have to leave if I cannot pay the extra money.

This has me so upset that I can't eat or sleep. What on earth am I going to do? Where will I go? Seems like they should not have accepted me back and told the P T rehab that I wasn't
ready.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With Quote
"Thanks for this!" says:
agate (08-20-2019), Twinkletoes (08-07-2019)
Old 06-22-2019, 04:23 PM   #2
kiwi33
Magnate
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 2,637
My Mood: Well I'm Back....Not 100% But I'm Here
Default

Kitty, this is way outside my experience but I am thinking about you.

__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
"Thanks for this!" says:
ger715 (07-11-2019), Kitty (06-23-2019)
Old 06-24-2019, 12:29 AM   #3
Jo*mar
Co-Administrator
Community Support Team
 
Jo*mar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 26,091
My Mood: Well I'm Back....Not 100% But I'm Here
Default

I wonder why they wouldn't let you walk, most hospitals around here want patients moving asap..
Were they short on staff to assist and thought it a risk/liability?
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jo*mar is offline   Reply With Quote
"Thanks for this!" says:
agate (08-20-2019), ewizabeth (11-11-2019), Twinkletoes (08-07-2019)
Old 07-06-2019, 04:25 PM   #4
kicker
Grand Magnate
 
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
Default

Kitty.

Sometimes I have to tell my self the answer is there is no answer. Life can really suck.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With Quote
"Thanks for this!" says:
agate (08-20-2019), Twinkletoes (08-07-2019)
Old 07-12-2019, 11:48 AM   #5
agate
Member
 
agate's Avatar
 
Join Date: Aug 2006
Location: In my head
Posts: 467
Default

What a nightmare. Do they expect you to be out on the streets with a tin cup in your hand begging for handouts so you can afford to return?

Does this place have anything like a human services coordinator or social services person--someone you can explain your situation to and ask what your options are? I hope so.
__________________
MS diagnosed 1980.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10.
agate is offline   Reply With Quote
"Thanks for this!" says:
Twinkletoes (08-07-2019)
Old 07-22-2019, 12:31 AM   #6
ewizabeth
Elder
 
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,252
My Mood: Well I'm Back....Not 100% But I'm Here
Default

Im so sorry this is happening. Sending love and hugs.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09

.


.

Video presentation of Rocky & Daisy
.
ewizabeth is offline   Reply With Quote
"Thanks for this!" says:
agate (08-20-2019), Twinkletoes (08-07-2019)
Old 08-07-2019, 04:19 PM   #7
Twinkletoes
Grand Magnate
 
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
My Mood: Well I'm Back....Not 100% But I'm Here
Unhappy

I'm so very sorry, Kitty! Please check back in and bring us up to speed asap. Sending gentle hugs and prayers. Love, Twink
__________________
Rochelle
.



.


I've lost my mind ... and I don't miss it!


LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
Twinkletoes is offline   Reply With Quote
"Thanks for this!" says:
agate (08-20-2019)
Old 10-25-2019, 08:30 PM   #8
Snoopy
Magnate
 
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,257
Default

Kitty, I haven't seen anymore posts from you since the two on June 22 and I am wondering how you are doing. Take care
__________________
Dx RRMS 1984
Snoopy is offline   Reply With Quote
"Thanks for this!" says:
Grammie 2 3 (10-27-2019)
Old 11-09-2019, 07:38 PM   #9
Kitty
Moderator
Community Support Team
 
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,573
Default

Hello again. So sorry I haven't posted in such a long time. I'm better but still have a long way to go. My kids have been a blessing to me and have gotten me in a nice assisted living community.
I'm going to rehab next week after I have a suprapubic catheter placed. Hoping it helps cut down on the UTIs so I can get well. I will write more later
Typing on this phone Is hard for me. I have missed everyone and hope you are all doing well.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With Quote
"Thanks for this!" says:
ewizabeth (11-11-2019), kiwi33 (11-10-2019), Snoopy (11-10-2019)
Old 11-10-2019, 01:44 AM   #10
kiwi33
Magnate
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 2,637
My Mood: Well I'm Back....Not 100% But I'm Here
Default

It is good to hear from you Kitty.

I hope that things will work out well for you.

__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
"Thanks for this!" says:
Snoopy (11-10-2019)
Reply

Tags
bed, days, extra, stand, walk

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Back after a set back, a lesson learned about risk factors. JB63 Peripheral Neuropathy 4 11-17-2011 08:48 PM
3 blown veins 2 days of back to back mris 487 pictures of my brain.... legzzalot The Stumble Inn 5 06-08-2011 12:29 PM


All times are GMT -5. The time now is 07:45 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy