one year anniversary.....(LONG)

02-07-2008, 09:49 AM

:Well,I can say that ive came along way in the last year..
but I still have alot of unanswered questions.
It all started with dizzyness the night before. I woke up,still dizzy,and drove myself to my neuro. I had the appointment for 2 months. I had no clue what was going on. For all I know it whould be another testing process. For I was in possible ms for 6 months. My neuro kept leaning tward migains,not ms.
But when I got there,it was a total different story. I told the nurse that I was not feeling well,and I was really dizzy. She left the room in a hurry,to get my neuro.
when she came in the room,she was very straight forward,and started the neuro exam. When I went to do the drunk test,I feel over and she had to catch me. But still I had no clue that I was in a flare.
She did somemore testing,and then she told me that she would like me to go to the ER and check myself in,cause I was having a severe msflare and she was going to give me IVSM..
What!!!!but Ithought it wasnt ms.
I had a wedding to attend in a few days. I asked can this wait,she said NO. I asked what would be the possible outcome if I dont start the steroids. She was agian,stragith forward and told me possible paralazsis,or blindness.
That scared the crap out of me,and I agreed. But I had to call my DH first,cause I had our only car.
I guess he couldnt understand me at all. So she asked if I wanted her to talk to him. And she did. I was cring by this time..
when I got to the ER,I couldnt walk on my own,so I drove to the ER entrence,and stubbled in there and let someone park my car.
I was so disorented,that I couldnt even tell them my personal info,they had to call my neuro's office,and get everything.
I was so scared,by myself,and had no clue what to expect.
I got checked in got to my room,and started bawling.
They asked if I was alright,I didnt know atall.
My DH.MIL,and my 10 year old daughter came to bring me some stuff,and to visit.
I was alittle relieved.
But those 3 days where not fun,if u can imagine.
I hated the way the IVSM made me feel. It raised my blood sugar from 95,to 200 within 6 hours. I was so hot,and my eye started burning.
My skin was starting to rash up,and burn. Oh joy huh.

I had a MRI,and I had 3 more lesions. Slowly I started to feel better.
Then to my neuro's suprise when she came to visit,and did all the neuro exams. I had improved so much that she said I was one of the luck ones.
welll,needless to say that wedding was a trip.
Sorry so long,but I had to get this off my chest.

But like I said,Ive came along way.
I have learned that this will be a part of my life forever,and to deal with the scary things that come along with this horrible monter.
Im march I started copaxone. I took it really well. and still am doing pretty good on it.
When I had my follow up MRI,the 5 lesions I had had dissapeared,and no seen active lesions. I was thrillled!!!
The one thing that this whole thing thought me,was to slow down and enjoy my life,enjoy my kids,and to not take anything for granted.
cause U never know what life will throw at u in it course.

thanx e1 for all the help and support trough this very hard year.

Alyson

FinLady · 02-07-2008, 09:58 AM

You've been through so much, hun. Thanks for sharing your story.

02-07-2008, 10:12 AM

no ,thank u jenn.
I still cant beleive its already been a year.

momXseven · 02-07-2008, 10:16 AM

Well that was not a fun way to get a DX

Sorry it was so hard. You have come a long way in one year.
Thank you for sharing your story.

snoodles · 02-07-2008, 10:56 AM

Wow Alyson,
That must have been very frightening but you are doing so well now and that is great !!!

6 months is not so bad to be in Limbo - I have been for 11 years. My Neuro also is hesitant on my dx because of my migraines - but I have never had an experience anywhere even close to what you described. (and my stuff is bad enough !)

Glad you have this year behind you and are doing so well !!

sugarboo · 02-07-2008, 10:57 AM

GladysD · 02-07-2008, 12:35 PM

:HUG: Aly- Thanks for sharing your story!! Looking backwards through the looking glass can be very emotionally draining!! Keep on Rocking!! You're one awesome person!!

ckepi · 02-07-2008, 12:40 PM

Well we share about the same anniversary and Copaxone start date.

I'm glad you are doing well and I hope this year gets even better for you!

02-07-2008, 01:37 PM

thanx guys.
I plan to keep fighting this MonSter with all Ive got.
and keep praying that someday they come up with a cure. if not for us,for our kids,and the ppl in the future,so they dont have to have the same storied that meany of us do.

thanx,
alyson

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