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02-07-2008, 09:49 AM | #1 | ||
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:Well,I can say that ive came along way in the last year..
but I still have alot of unanswered questions. It all started with dizzyness the night before. I woke up,still dizzy,and drove myself to my neuro. I had the appointment for 2 months. I had no clue what was going on. For all I know it whould be another testing process. For I was in possible ms for 6 months. My neuro kept leaning tward migains,not ms. But when I got there,it was a total different story. I told the nurse that I was not feeling well,and I was really dizzy. She left the room in a hurry,to get my neuro. when she came in the room,she was very straight forward,and started the neuro exam. When I went to do the drunk test,I feel over and she had to catch me. But still I had no clue that I was in a flare. She did somemore testing,and then she told me that she would like me to go to the ER and check myself in,cause I was having a severe msflare and she was going to give me IVSM.. What!!!!but Ithought it wasnt ms. I had a wedding to attend in a few days. I asked can this wait,she said NO. I asked what would be the possible outcome if I dont start the steroids. She was agian,stragith forward and told me possible paralazsis,or blindness. That scared the crap out of me,and I agreed. But I had to call my DH first,cause I had our only car. I guess he couldnt understand me at all. So she asked if I wanted her to talk to him. And she did. I was cring by this time.. when I got to the ER,I couldnt walk on my own,so I drove to the ER entrence,and stubbled in there and let someone park my car. I was so disorented,that I couldnt even tell them my personal info,they had to call my neuro's office,and get everything. I was so scared,by myself,and had no clue what to expect. I got checked in got to my room,and started bawling. They asked if I was alright,I didnt know atall. My DH.MIL,and my 10 year old daughter came to bring me some stuff,and to visit. I was alittle relieved. But those 3 days where not fun,if u can imagine. I hated the way the IVSM made me feel. It raised my blood sugar from 95,to 200 within 6 hours. I was so hot,and my eye started burning. My skin was starting to rash up,and burn. Oh joy huh. I had a MRI,and I had 3 more lesions. Slowly I started to feel better. Then to my neuro's suprise when she came to visit,and did all the neuro exams. I had improved so much that she said I was one of the luck ones. welll,needless to say that wedding was a trip. Sorry so long,but I had to get this off my chest. But like I said,Ive came along way. I have learned that this will be a part of my life forever,and to deal with the scary things that come along with this horrible monter. Im march I started copaxone. I took it really well. and still am doing pretty good on it. When I had my follow up MRI,the 5 lesions I had had dissapeared,and no seen active lesions. I was thrillled!!! The one thing that this whole thing thought me,was to slow down and enjoy my life,enjoy my kids,and to not take anything for granted. cause U never know what life will throw at u in it course. thanx e1 for all the help and support trough this very hard year. Alyson |
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