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Old 03-10-2008, 10:11 AM #1
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Default LONG Hi everyone! I'm back!
Hi everybody!

It has been a very rough three weeks. I am exhausted. I'm home.

Thank you to everyone for all of the concern, prayers, etc. .

My mom is not doing well. The tumor is so large that it has started to crush her esophagus and that is why she was unable to swallow solid foods or keep anything down. She is still in the hospital and has had a feeding tube put in her stomach. It is only temporary, thank goodness.

She is going to start radiation therapy this week to shrink the mass so that she will be able to eat again. Surgery is not an option because of the location and irregularity in shape. The oncologist will be doing more tests to determine the point of origination. I don't think it even matters at this stage. We are hoping for the best but preparing for the worst.

I am hoping to go back to Pittsburgh as soon as I can. This darn MS is making things really difficult! I have to get a T-spine mri tomorrow and see the neuro. Wednesday I get my second Tysabri infusion. I also need to try to get back to work soon. My short term disability benefits run out on April 23. There is just too much going on right now; I feel like screaming.


Sorry for being such a downer. I will try to cheer up but it seems like that would just take too much effort right now.
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Old 03-10-2008, 10:14 AM #2
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I'm so sorry she isn't doing well, you still have my prayers head her way and some prayers heading your way to.
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11).
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Old 03-10-2008, 10:27 AM #3
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Welcome Home, Joelle..

I hope all turns out well for your Mom.....Prayers on the way....And for you, too.

Good luck with your tests. Keep us posted.
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Old 03-10-2008, 10:29 AM #4
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Thanks for the update, J. Sorry it is all so difficult for you and your mom. Many of us are praying for you all and I hope that you can find some solace in that.
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Old 03-10-2008, 10:35 AM #5
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I'm terribly sorry to hear about your Mum, Joelle. I shall keep both of you in my thoughts and prayers.

All the best,
Chris
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Old 03-10-2008, 10:35 AM #6
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Welcome back Joelle!

Sorry your mom's not doing well. Please take care of yourself and get some much needed rest. You're both in my thoughts and prayers.
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Old 03-10-2008, 10:38 AM #7
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we're with you all the way, friend!

not a downer at all... so encouraging to see you are able to get back for your appointments... maybe you can get a lil bit of rest before heading back to mom...

so good to see you!!
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Old 03-10-2008, 10:39 AM #8
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Thanks for the update on your mom. I hope the treatment goes well for her.

Prayers still being sent your way. Hope you get some much needed rest now that you're home.
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Old 03-10-2008, 11:37 AM #9
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Welcome Back Joelle

Sorry to hear you're mom is so ill. I'm sending prayers and thoughts in her direction and yours. Be sure and take care of you too!

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Old 03-10-2008, 11:44 AM #10
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Aww, hon, I'm so glad you're home and so sorry for the circumstances.

I know you're tired so I won't try to call you today - in fact, you just call me whenever you have the energy and feel like talking. You know me - I'm always home and whatever time you call I'll more than likely be awake!!

It's good to see you posting again. Take care, get some rest and remember that all your friends are praying for you.
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