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Old 04-14-2008, 02:41 PM #1
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Unhappy Scary night last night

I'm so sorry that I haven't been back to reply to post and PM's.

I think I may be having a flare, I'm not sure what's going on. I have been feeling off and on (bad days, good days ya know what I mean) for the last week or so. Saturday was wonderful...I was happy and felt good. Yesterday morning I woke up feeling pretty good, but something was not quite right. I just couldn't figure it out. Ya know that nagging feeling that something is wrong?

Dh and I went to the park yesterday morning. It was a beautiful comfortable day and I wanted to enjoy it. I was careful not to do too much walking without taking breaks to sit down and rest. We even left earlier than planned because I did want to over do it.

By yesterday evening I was in such a terrible mood and I don't know..."out of sorts" I guess. My balance was getting worse...I was walking forward when all of a sudden I started backwards and dh had to catch me to keep me from falling. He started to noticed that I would transpose letters when talking...instead of saying for example the dog barked I'd turn it around to the bark doged It wasn't with every word but I did that several times. I also would type the wrong letters. It was as though I have dsylexia.

I was talking with dh about some stuff on the computer when all of a sudden I couldn't say what I wanted. I would start a sentence then blank out. I couldn't even think of what I wanted to say. All I could do was look at dh knowing he was waiting for me to talk. This wasn't like "right on the tip of my tongue" or just plain forgetting...it was really weird and scary. He kept saying what (wanting me to tell him what I had to say) and I'd open my mouth but there was nothing. When finally I could say something all I could say was I don't know. I had no idea what I was trying to say or how to say it. It really scared me because it wasn't just one time. It was like this for several minutes because dh didn't understand that this time it was different than forgetfullness and I kept trying to talk but couldn't. It scared the crap out of me because I have seen people who've had strokes do the same thing I was doing last night with trying to talk and can't.

Today I am tired, just turning my head sometimes makes me a little dizzy. My balance is worse than it has been in a while and my feet and legs hurt/tingle/feel weird. I feel like I've been run over by a steam roller. My entire body is heavy. My fingers don't even want to work sometimes. I think I could go to bed and sleep for at least a week.

I'm supposed to go to the Springsteen concert tonight (I'll have my wheelchair) then Saturday fly to TN for 2 weeks.

I don't know what to do. I need a hug.
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Old 04-14-2008, 03:20 PM #2
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Suzyqz, please call your doctor and explain what happened last night. What you describe doesn't sound right and you need a professional to run this by. It could just be a fluke thing but it is too serious to not tell your doctor.

In the meantime,

Sandy
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suzyqz_2007 (04-14-2008)
Old 04-14-2008, 03:33 PM #3
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Suzy,

Go to the neurologist as soon as you can. It could be the start of an exacerbation, or something else.

Forget the concert and get to the doc ASAP.

-Vic
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Old 04-14-2008, 04:05 PM #4
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Quote:
Originally Posted by Victor H View Post
Suzy,

Go to the neurologist as soon as you can. It could be the start of an exacerbation, or something else.

Forget the concert and get to the doc ASAP.

-Vic
Ditto ditto ditto.
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suzyqz_2007 (04-14-2008)
Old 04-14-2008, 06:12 PM #5
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I feel so bad for you Suz~ Please tell me you called the Dr~

Update us when you can, as we're worried.
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Old 04-14-2008, 06:34 PM #6
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Feel better soon.

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Old 04-14-2008, 07:56 PM #7
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Suzy - I hope you called the neurologist and sought his advice. Please let us know how you are doing and if all is well. Saying some prayers for you that everything is fine.
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Old 04-14-2008, 08:56 PM #8
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(((((((((((((((SuzyQ))))))))))))))))

Ditto to call the Doc and let us know..
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Old 04-14-2008, 09:56 PM #9
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My daughter had times that she does that. I'm not sure what it is, but she did it in the neuro's office once. Usually when she does this, I try to distract her from what she was going to say.

That day she was trying to ask the neuro a question. She started and stopped and started and stopped. I tried to help her out. The neuro told me to just wait. To let her keep going.

My husband explained to the neuro that she does that sometimes. He explained that he had been worried it was a type of seizure. The neuro just watched her. He never said anything except that he was glad that he had gotten to see it.

To this day I do not know what it is. The neuro did not do anything differently. He did a complete neuro exam on her that day.
I'm not sure if he felt it was a type of seizure or not.

I guess I should ask him about it in May.

I would definately check with the neuro.

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Old 04-15-2008, 02:46 AM #10
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Thank you all so much! When I posted earlier I felt so emotionally/physically drained. I am feeling some better now but still have all the stuff I mentioned earlier...except I haven't had any problem with not being able to talk.

I talked with the neuros nurse. She said that it sounded like I may be starting a flare and she would discuss it with the dr. and call me back. She told me to be sure to keep a detailed journal of what happens and to give it a day or two. If anything happened like the talking thing again for me to go to the ER so that I could be seen right away without having to wait. Well I haven't heard from the dr. yet. I don't do steroids so if it is a flare I'll just ride it out.

Dh didn't want us to go to the concert, he was so worried about me, but I told him the only way I wasn't going is if I was in the hospital and if he didn't want me to go then he'd better call an ambulance cause I was seeing Bruce Springsteen! Besides we paid almost $200 for those tickets and have had them since before Christmas!

I said a prayer and took a nap. I slept good and when I got up I did feel better and WOW am I glad I went to that concert! It was great and if I have to spend all day tomorrow in bed because I went it was worth it!




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