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A friend of mine was dx with HIV, and he very seriously contemplated suicide over the weekend. Just the thought of having to tell all his partners was too much for him to bear. Wrong "John Smith" . . . :eek: They called him on Monday, and he didn't even have it. :) Cherie |
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I have been in limbo twice. Once, for almost 2 years, following my initial flare. And, again, when I added an MS specialist to my regime of doctors, and she was not sure that I had MS, even though I'd been dx 5 ys prior. Pushing for a dx may not be in our best interests, if the dx we receive is not accurate. Let the doctors take their time, and be sure. ~ Faith |
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you're in Canada, gotcha ! I think some of the biggest obstacles for proper diagnosis and care are laid in the paths of people *above* the poverty line in the US... those stuck in the gray area of lower middle class, working single moms, with jobs and/or child support $ that doesn't allow them to qualify for Medicaid, (US gov't-paid medical care for low income people) many must either borrow money, or do without to scrabble together the funds for doctor visits and tests :sigh: |
thank you everyone, its something i have wondered for a long time, reading all the limbos post and those knowing deep in their heart what it is. I too spent a number of years(7) being miss DX'ed. it was just an odd chance I had a severe headache when I went in that time back in 06, they had to look deeper, I never got headaches, am pretty sure if i did not have that headache they would of patted me on the back sent me home and told me to see a shrink like they were starting to do prior to that 2006 visit. I know the SX's are so similar to other issues and can relate to the docs in those cases, it just seems docs are reluctant at times. thanks folks for your ideas.
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I think a lot of Nueros think they are God, and when they realize that only the real God can cure MS, they close their minds to us. Those kind also resent the fact that we educate ourselves and that we don't buy the usual BS they spew..:rolleyes:
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I only have a "probable" dx but my neuro says I have MS 100% - but since my insurance company says you have to have to meet certain criteria to pay then my neuro only has an option of saying "probable".
I personally don't think it is fair how the insurance companies work..... I have a certified Neuro that says yes, she has MS but and insurance company that says your neuro exam and her sx are not enough for us, sorry! I have gone through almost 2 years of testing to rule everything else out that may be causing my sx - and the two small lesions that I have on my neck are not large enough to be called MS. What am I - am I in limbo? I can't answer it.... the insurance company says there is nothing wrong with me, my neuro says you have MS, I know there is something wrong cause my body certainly isn't right or what it was 2 years ago....... that is my rant.... |
Perhaps a letter from your Neuro to your Ins. Co. would help. That would make your DX official and I wouldn't think your Insurance could refuse to cover you.:hug:
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I know I have, in the past, asked my insurance claims processor more than once where s/he got their medical degree. :eek::p |
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Brain surgery? Surgery smurgery...you dont need that! Here! Have some lipstick (which will be charged to your insurance) That large, broken femur bone doesnt need to be treated...you just need some lipstick! (to be charged to your insurance!) Please note, I'm in a weird mood tonight, and most of what I may be typing tonight will probably be full of snarky comments...none of which are aimed at anyone here, but probably towards doctors and insurance companies, and receptionists at the Urgent Care who got all pissy because I called them 5 minutes before they were to close up shop. (it's not like I was going to show up on their doorstep 2seconds later...I just needed to ask a non-emergency medical question and didnt want to tick off my real doctor by waking him up at 1am) |
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