Hi All,
Just wanted to update you on the status of my relentless, miserable high fever and elevated liver values a couple of weeks ago. Turns out I had/have Lyme Disease, urghh. Dag, doesn't having MS get me a free pass from all the other nasties out there?

The good news is that despite my now former GP running a different blood test every few days without treatment and not considering that a Lyme result just below the positive range might warrant further exploration...I decided to advocate for myself when my liver values started rising and I gained 8 pounds in 5 days despite not eathing hardly anything. I took the long drive to a big hospital and within 24 hours of their wonderful care and antibiotics I felt so much better.

Been good ever since and thank 'the powers that be' because if I could have mustered the strength I would have offed myself by about day 5. Haven't had a high fever since I was a child and OMG did I forget how debilitating it can be.

Hope everyone is good today and thank you for all well wishes when I posted about this originally. Jules

Oh Jules, I am so glad you went for a second opinion. Thanks for updating and I'm happy to hear your on the mend!

Jules

So happy to hear that you finally got taken care of! Bad GP. I hope you let that doc know just exactly what the situation was/is!!

Get some rest and get better!!!

Me too, Jules..

Yeah, you would think so! So happy you are on the mend!

Isnt Lyme one of the mimickers of MS? Could you have had Lyme instead of MS all this time?

Jules, I'm glad to hear you are feeling a bit better, and got a second opinion! Take it easy and get a lot of R&R!

It definitely is and I am glad that I was treated before any Lyme related neuro stuff started happening!

As much as I would love to give it back I'm pretty confident I have MS. Both my earlier Lyme tests were strongly negative and my MS seems to be as close to text book RRMS as there is with eye issues that have resolved and some paresthesia but none of the joint problems that I think are pretty common with Lyme.

LD sucks! Only had it once, but everyone in my sister's family seems to get it at least annually. Be kind to yourself. I was really tired for quite awhile even after finishing 3 weeks of abx! Glad you were able to catch it early on!

I had Lyme tests (the ELISA and the Western Blot) that both showed a couple of the Lyme specific bacterias, but not enough of the bacterias for my problems to be diagnosed as Lyme and not MS. I think on one of the tests, I had 2 of the 3 bacterias needed for a positive Lyme test, on the other test I had 3 of the 5 needed. Irritated me that they never investigated that earlier, since I'm guessing that if I had a few of the bacterias show up on a test, that maybe I've at least been exposed to a Lyme infected tick.

I'm still assuming that the neuros were right and that I have MS, but I still have the suspicion that it may be Lyme. But I guess once you get the neurological symptoms, they cant do a whole lot for it after that. Lyme is still not understood very well, similar to how they still dont know a whole lot about MS.

besides the fact that I've had so many antibiotics in the last two years for various infections that my body's supply of natural flora is all screwed up and now I've apparently got overgrowth of the bad bacterias. I dont want to go near any antibiotics any more.

At least now that I've gotten some of my teeth worked on and gotten most of the low grade dental infections dealt with (two more visits to go!) I'm feeling a lot better neurologically now. I think most of my neurological stuff has been related to the dental issues I've had.