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11-08-2008, 09:10 PM | #1 | |||
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Elder Member
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Hey Laura hows the
how you been? doing well I hope, thought a hijack would help here, and if gaztastic shows up cool,
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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11-08-2008, 10:56 PM | #2 | |||
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Magnate
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Well I messaged you, lol. My mouth's suddenly back to burning in the past 3 days, go figure. NOT SMOKING. Still haven't had a puff or desire to have a puff since quitting.
Anyways... now I have the daunting task of trying to figure out.. is the burning mouth in fact connected to trigeminal neuralgia, and do I have atypical trigeminal neuralgia? My dentist said I had the classic TN... hrm. I just need to find a treatment plan that works. Pain or no pain, I'm going back to work on the 24th. MS isn't going anywhere, Trigeminal Neuralgia isn't going anywhere (least not for now!) and my TMJ (Jaw) is all fired up because I've been chewing gum for the burning mouth! Vicious cycle
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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11-08-2008, 11:06 PM | #3 | |||
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Senior Member
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Quote:
Ha! It should be Habanero instead of just Tabasco! Laying on the sauce again, Dimpled One? Hmmm..... I'm thinking you need another set of acronyms. TMJ, TN, MS, NS (non-smoker).
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11-08-2008, 11:33 PM | #4 | |||
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Elder
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Congrats on quitting and continuing to quit Laura!
Speaking of hot sauce, tonight at our regular Mexican restaurant as I was snorfing down chips and salsa, it was so hot, that not only did my nose run, but my eyes watered too! That's late season jalapenos for you! You could use them to fry eggs! Anyway, I'm sorry your burning mouth has returned. Have you tried taking lysine? It completely controls the problem for me.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | dmplaura (11-09-2008), FranksAngel (11-09-2008) |
11-09-2008, 01:33 AM | #5 | |||
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Magnate
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Quote:
I have not tried that one if it's the one I'm thinking, because it was specifically for cold sores. It may be something to consider. In other news, I got some sweet digital pictures of the insides of my cheeks if my dentist wants them for his 'collection' haha. What I thought was Oral Lichen Planus is definitely not OLP (as confirmed already). I got the French word they suspected (secretary said "leukodem"... to me sounds like leukoderm or leukoderma) but honestly I think it's a build up of keratin (if that's the right word?) from smoking that HOPEFULLY will fade over time. I'm considering trying 2 techniques to see if either works. One involves taking large amounts of beta carotene supplements (which works for Leukoplakia apparently in some cases... although what I have in no way resembles leukoplakia either). Imagine a series of almost completely side by side lines that run from top to bottom of my cheeks like extremely fine wires. It's wild! The dentists all said "Benign" but are still sending me to a specialist in Feb. 09. So I guess we'll find out more then? Unless I can clear these patches up myself through no smoking and beta carotene Course... another option is oral lycopene for leukoplakia. Since these seem like treatments that I may be able to read about myself and try myself outside of doing the doctor dance, it's worth a shot either way. Especially in the case of beta carotene. I think the pain is almost 100% related not to mouth lesions etc... but to the TN or ATN idea. Because.. head pain came back, and so did the mouth pain. Pop back a Clonazepam, head pain (burning) subsides, as does the mouth. Go figure. WALL OF TEXT HITS YOU FOR 10,000 damage!!!!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | FranksAngel (11-09-2008), Gazelle (11-09-2008) |
11-09-2008, 07:40 AM | #6 | |||
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Elder Member
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Hey laura have you post in the TN forums asking if others get BMS? you may be right
hey Gaz did I see you said you played french horn? I played in band for all my school years. I played trumpet, and could also play french horn, tuba, trombone, sax, clarinet and flute and picciolo recorder or what ever they call it now a days I could play a mulitude of instruments, just didnt follow that direction after schooling hows this for saving your thread ooopsie
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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"Thanks for this!" says: | dmplaura (11-09-2008), FranksAngel (11-09-2008) |
11-09-2008, 11:02 AM | #7 | |||
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Senior Member
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Six years of French Horn. I played violin, drums, trumpet, and piano too. But the French Horn was and still is my first love. I fell in love with it in the 3d grade and wasn't allowed to play it until 7th grade (when it was free lessons/instrument to use).
I'm still sad because I sold my horn (for far less than it was worth) when I was doing my kitchen years ago and needed money to finish the kitchen. My H told me that I never played the thing and had to get rid of it. But I had pulled it out at least 2-3x a year and oiled it up, polished it, and played it. I loved that horn. You're a talented guy, Frank. I never identified with the reed instruments for some reason. But I do love the sax. Last night's symphony concert included a piece that featured the oboe. That's such an odd instrument. Played in marching band, concert band, and orchestra. Sat 1st chair 2nd horn. My band leader had far more confidence in my playing than did I. AVALANCHE OF MUSICAL NOTES HITS YOU for 7,500 damage.
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"Thanks for this!" says: | dmplaura (11-09-2008), FranksAngel (11-09-2008) |
11-09-2008, 11:41 AM | #8 | |||
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Elder
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Anyway, I hope you get whatever it is under control soon, and that your head pain subsides too.
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | dmplaura (11-09-2008), FranksAngel (11-09-2008) |
11-09-2008, 12:12 PM | #9 | |||
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Magnate
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I do get canker sores, but my understanding of cankers was that they are not viral and cold sores are?
Cankers are an imbalance in the mouth? A pharmacist said the cankers are the result of an overgrowth of bacteria? Beats me. I know they come back to haunt me if I have acidic foods or bite my mouth accidentally, but are gone within 3-5 days generally. ROFL Gaztastic @ avalanche of music notes. Barely a flesh wound! Frank I posted on the TN forum yup.... have not checked yet, came here first!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | FranksAngel (11-09-2008) |
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