What were the results of the LP, Leggs ... did you find out if you have O-bands?

I swear they put us through He!! so that anything seems better then that when all is said and done. The good news is that living with this disease, year to year, won't likely be 1/2 as bad as what you've gone through in this last two months. :) :hug:

Cherie

I agree with what Cherie said. I recall round 1 with IVSM. I hated the stuff. Was dreading going in to get every IV. I especially hated the taper off pack I was provided. I couldn't sleep!

In the end however, I almost had my old 'me' back, after the roids had worked their way out of my body. I just remember waking up one day and thinking "Omg... no symptoms!! :trampoline:".

Of course since that time 1 relapse threw me back into IVSM land (2 months after the fact), and the SoluM got me back out of that relapse.

Give it time. I'm sorry to hear all you're going through. It's crummy as heck! I am crossing my fingers you'll get through this one, and you'll get relief.

Then channel some of your super energy my way to fix my borked out Trigeminal Neuralgia please! :hug:

The only response on the LP so far is that it came back abnormal which he was expecting and he is still waiting on the final results.

He was too busy yesterday trying to convince me to go back in for more roids to really talk to me about the rest of it. The good news is the water pills are working and I have peed 22 times since I took the one pill last night and i have lost 4 of the 7 lbs I gained. Seeing as the normal IV therapy people don't work weekends the other dopes at the hospital who did my IV saturday and sunday didn't feel the need to flush the roids with the second bag of saline. I am pretty sure this is why I kept getting sick. last night wasn't so bad.

Did anyone else get car sick from the roids? I don't know if it's the meds or if it is a lingering effect from the LP but I feel sick every time I get in the car.

I am starting 3 days of IVSM tomorrow....luckily for me they are coming to my house and they mix the solumedrol with D5W! They like me!!! So I am having IVSM for Thanksgiving...

The good news maybe by Thursday I get to feel my feet again and maybe my right arm and hand!! Woohoo!

I hope you are feeling better soon Legzz....IVSM doesn't have to be torture. I was counting how many 3 day IVSM infusions I've had since my dx in 2001 and this makes 31....and that doesn't count all the one day pulses...I am actually looking forward to this one cuz I have been sick for so long I need to feel better!!!!

Rest and keep drinking those fluids!! They do help! :hug: