Ok, I'll share -

When I got the confirmation MRI results that I had MS, we moved 1500 miles away within a few months. Everything was paper records in the 80's. We moved away from the dx.

I took a job with high pay and got training that would make me employable even in a wheelchair. Turned out to be a good move.

I loaded up on life insurance. No official dx.

Next house we bought was a ranch, just in case...

None of this was really necessary, and it actually worked out quite nicely. I have only one regret - we decided against having any children because of the uncertainty.

Tom

Tom if ever you get lonely you can borrow mine! She is a handful but she LOVES looking at the stars and learning about planets. She also likes things that go fast and all things fire, you two would have a lot in common!

Thank you for sharing. I love your story!

I do think all you did was necessary because it just seems to me that if we hadn't planned for the worst case scenario it would have come much sooner. Or maybe thats just how my bad luck usually works out?

Also our health status could change very quickly, antijinx so its nice to be as prepared as possible I guess.

well, here's my story ...

when I started have sx's coming alot more frequent .. November 2006 - March 2007 from pains thru-out my left elbow, hip/leg area, to bronchitis, to total numbness on left side to drop foot ... I finally went to a doctor - uh, didn't even have a PCP at the time - I was working FT, plus preparing tax returns for my own business ... going 100mph ...

in April - dx'd with MS (whatever THAT is!!) .. I had no clue!!

took me 4 months of aggrevation working with the employer's disability people and SSDI ... had no clue!! that, I decided to return back to school to finish my master's in a whole new degree - non-profit ..

since then (still waiting after 3 denials with SSDI and now in a lawyer's hands) ... I'm one course away from graduating ... and have gradually come up with a non-profit program making quilts for those in need ... and making other items (like pillowcases, tote bags, towels, paintings - watercolors, acrylics) to sell online to raise money to make quilts ...

it's coming along rather nicely ... and my next move (hoping this next summer) to move to Door County .. "the Cape Cod of the Midwest" with the program and continue to work with my art ...

thanks for letting me share ... (and to build my lighthouse!)