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| The Stumble Inn The place for social chat for our M.S. community. |
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03-04-2009, 01:51 PM
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#11 | |||
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Elder
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Here's the photo taken this morning during the signing of the Proclamation. It was great! From left to right are: Mike Kyle - MS Walk and Volunteer Coordinator; Erin Farrell, Development Coordinator; Lt Governor Brad Little; me; State Representative (House Majority Leader) Mike Moyle; State Representative Scott Bedke.
Mike Kyle has MS. Mike Moyle has 3 family members with MS.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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03-04-2009, 02:20 PM
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Wise Elder
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My son's fraternity is doing a MS Mud Bowl this spring. A little late for awareness week but it's a good start! We'll be there to watch and root for the volleyball mud slinging.
PS: Illinois has a lotto program aimed at all proceeds going to multiple sclerosis research. Illinois Lottery Acting Superintendent Jodie Winnett and President of the National Multiple Sclerosis Society, Greater Illinois Chapter Lynda Chott, announced the release of a new instant ticket that will fund research aimed at developing preventative measures and treatment of MS. "It's Double Time!" is the first instant ticket in U.S. Lottery history where 100 percent of net proceeds will be used to help people in Illinois living with MS
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt Last edited by SandyC; 03-05-2009 at 01:44 PM. |
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03-04-2009, 11:38 PM
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#13 | |||
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In Remembrance
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Other than being totally aware of MS myownself, I'm not doing much. I may give a bit to NMSS. I haven't done that for awhile.
Nice Photo Op Cherie. You look so teensy in there with all those big ole cowpokes. 
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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03-05-2009, 08:05 AM
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#14 | |||
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Magnate
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Once again, thanks for the reminder!
I wrote to all my state reps and senators to remind them that they have many constituents with MS and that we still don't have many of the things we need to thrive and survive in our state and in this country, pressing the point that through no fault of our own, we are stricken with this disease, have to go through a two year waiting period for health care when we are found disabled IF we get on disability, often losing our homes, savings, friends, lifestyle, jobs and insurance. MAKE SOME NOISE PEOPLE!!!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | AfterMyNap (03-05-2009), Desinie (03-06-2009), SallyC (03-05-2009), SandyC (03-06-2009), tovaxin_lab_rat (03-05-2009) |
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03-05-2009, 08:42 AM
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Magnate
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Proclamation was yesterday in the local chapter here in Maine also with orange flags flying every where!
I was not able to attend for I had something else scheduled. It was suppose to be Monday but due to the snow storm is was changed. A lot of people put a lot of hard work into this week! Thank you to all who help!
__________________
Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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03-05-2009, 08:50 AM
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#16 | ||
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Magnate
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you look beautiful flygirl!!!!! great work!!!
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sox . . |
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03-05-2009, 11:15 AM
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#17 | ||
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Member
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MS WeeK??? ReallY? I had no idea.
The local news in SoCal has spent all its time this week talking about the teenager who wants to pass a "no cursing law." Apparently, they think its "cute" that this kid wants to impose his own form of censorship on the entire county of LA. Hey, who cares, right? Promoting censorship is much more important than reminding people of a serious illness 
__________________
Relax--It only hurts until you die . I'm still walking upright and six feet above ground. . |
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03-06-2009, 05:37 PM
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#18 | ||
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Member
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Video from C-Span with the House Session discussing MS Awareness Week,etc.
http://www.msactivist.blogspot.com/] |
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