Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 10-07-2009, 02:44 AM #11
olecyn's Avatar
olecyn olecyn is offline
Member
 
Join Date: Aug 2006
Location: Anaheim, CA
Posts: 737
15 yr Member
olecyn olecyn is offline
Member
olecyn's Avatar
 
Join Date: Aug 2006
Location: Anaheim, CA
Posts: 737
15 yr Member
Default

Quote:
Originally Posted by fern View Post
Thanks everyone. My neurologist phoned and actually said something like --TOS didn't show up on the EMG but you know that an EMG doesn't usually show TOS and you definitely have it. Wow, I thought I had chosen her because she is a nice person and as long as I couldn't find one that new about TOS in my area, I thought at least I could choose a nice person who has a reputation of being a good patient advocate.

I did see the report and the Dr testing said that he couldn't perform the C-8 nerve root test completely due to my pain level during the exam. I have to say that this part of the test was extremely painful and left me with quite a flare.

I'm done testing for now (I think I can safely say I've done them all) and will begin with another course of PT. I'm going to see if I can focus on the nerve glides in PTand continue the Sharon Butler pgm on my own. I know that I have neurogenic and vascular but my vascular issues have decreased some this past year I think by the work I am doing with the lymphedema specialist who also does some myofascial work with me. One goal is to learn to be able to put my arms in the position that B.W. illustrates as palms up is really not obtainable w/o pain or for any duration for me. btw-I do also use those "miracle balls" and find them quite useful as does BW.

Has anyone tried the ART therapy? It seems you can obtain it only fr a trained person at a chiro office which for me is not possible insurance-wise but I thought I had heard that it's quite effective.


I did and still do wonder how tendonitis shows up--as the current neurologist said that I may also have this in addition to the TOS and cervical disc issues.
Fern,
Happy to hear ur Neuro set it sraight for you. After all the EMGS 35 docs have done on me, some mild to nada they dont mean a thing about TOS entrapement in the BP. EMG's are used for entrapments of nerves in the arm, shoulder, not the BP or cervical areas.

You are on the right path & have more knowledge than most. Did u know an MD student never learns about TOS in med school. However, a DO learns about it in the first year of school. I have found DO's have a keener sense of the anatomy & TOS, how the ribs need to put in place & re-adjusting the mechanics of the body. Interesting...aye? This was brought to my attention by another TOS patient introducing me to a DO & his studnets. The 3rd year med student came over to the DO students to learn what TOS was while they were working on us. *No chiropractic manipulation.
__________________
Cyndy

.
color="Black">Slowly I turn, step by step, inch by inch *The 3 Stooges
.
olecyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (10-07-2009), Jomar (10-09-2009)

advertisement
Old 12-03-2009, 11:03 PM #12
HopeLivesHere HopeLivesHere is offline
Member
 
Join Date: Sep 2006
Posts: 292
15 yr Member
HopeLivesHere HopeLivesHere is offline
Member
 
Join Date: Sep 2006
Posts: 292
15 yr Member
Default Interesting

Interesting - it's too bad I'm so late reading this.

Like many of you, work comp has ruined my health and my life by
denying and delaying care.

Almost 8 years ago I was diagnosed with TOS and RSD.
There were days I couldn't move my arms to feed myself.
2 1/2 yrs ago I had an intrathecal pain pump placed.

Because of the intense pain I experienced every day before the pump placement, I'd never had an EMG.

After all this time, and with the pain pump in place, my lawyer sabotaged my case by sending me to an AME who does not believe in TOS and RSD.

The AME took my arm, stood blocking my view and without my knowledge began the EMG.
I screamed as he continued, saying "good news" you have carpal tunnel.

Strange, I've never had any numbness or symptoms of carpal tunnel. When I told him that, he said "Yes you do."

I had all the S&S of RSD and TOS though.

You might have guessed he said I don't need the pain pump. Of course he didn't see me before so how would he know? I have the pump because it works!!!!

The horrible shooting electrical pains I had before the pump have returned since the EMG.

I'm thinking if I had kept coming to this forum I could have avoided some of the problems I'm having now.
HopeLivesHere is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jomar (12-04-2009)
Old 12-11-2009, 05:04 PM #13
vannafeelbettr's Avatar
vannafeelbettr vannafeelbettr is offline
Member
 
Join Date: Dec 2009
Location: suburb of Philadelphia, PA
Posts: 147
10 yr Member
vannafeelbettr vannafeelbettr is offline
Member
vannafeelbettr's Avatar
 
Join Date: Dec 2009
Location: suburb of Philadelphia, PA
Posts: 147
10 yr Member
Default Somasensory Evoked Potentials Test confirmed my TOS

I was seen by a doctor in Plymouth Meeting, PA who is a genius at nerve dysfuction. NOTHING showed on my EMGs. He did the nerve test, similar to an EMG called SSEP, or Soma Sensory Evoked Potential, where the time is tested for how long the message sent to the nerve gets to the brain and vice-versa. With this testing I came up positive for severe nerve damage, and a diagnosis of Brachial Plexopathy/ TOS was given.

Good Luck! Vanna
vannafeelbettr is offline   Reply With QuoteReply With Quote
Old 12-11-2009, 10:19 PM #14
brooke13 brooke13 is offline
New Member
 
Join Date: Dec 2009
Posts: 1
10 yr Member
brooke13 brooke13 is offline
New Member
 
Join Date: Dec 2009
Posts: 1
10 yr Member
Cool What are the personal symptoms of TOS

Just wanted to know what people;s symptoms were so I could decide if I should bring it up to my doc........
brooke13 is offline   Reply With QuoteReply With Quote
Old 12-19-2009, 10:26 AM #15
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi,

I had 3 EMG's and they didn't show anything. I think they are the biggest waste of insurance money. How many does a person need to prove a point?

The 3rd one I had was by a Neurologist that said he didn't believe in TOS. I think that is seen often with Drs.

A hand surgeon sent me for the last one and nothing showed up on it. He diagnosed me with carpal, cubital, radial and ulner nerve syndrome along with RSD and Fibro.

I think it should be one test that the insurance companies quit wasteing their money on.

There are test done by regular TOS Drs. that they can tell you have the TOS but as far as other Drs., I ran up on a lot that couldn't diagnose it or didn't know what it was.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
How to diagnose MG? AlexM Myasthenia Gravis 13 09-25-2009 02:05 AM
What is the best to Diagnose Hydro? MRI? somegent Hydrocephalus 4 02-06-2009 06:49 AM
is this elbow pain TOS? who can diagnose? fern Thoracic Outlet Syndrome 8 06-03-2008 12:44 AM
who can diagnose tendonitus... vs TOS fern Thoracic Outlet Syndrome 12 01-31-2008 12:22 PM
R there any tests to diagnose TOS for sure? Please help, i'm so confused about tos. sweettheresa Thoracic Outlet Syndrome 19 12-15-2007 07:00 PM


All times are GMT -5. The time now is 02:52 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.