NeuroTalk Support Groups - To Try to Gather Information

Freetofu I will allow and respect anyone's opinion - the exception being sympathetic to someone coming here to work illegally, file an illegal claim on an old injury, take the money, go home, and then go to another state (in my capacity as an attorney for the ins. co.s I noted that Texas seemed to be the next choice) and then file for the same injury, as a total scheme or really, scam. This criminal behavior hurts the rest of us who have legitimate work comp claims, and it's really off-topic, so it was my fault for bringing it up...I know that most - I am guessing over 80 percent or even more - of the claims are legitimate, and more are even treated badly by insurance co.s, so I am on "our" side, believe me. If I let out even a little of my anger towards the insurance co.s and healthcare, whew, this page would turn red. But I want to stick to my post. I don't think you're advocating crime - I think you're raising a good point about being compassionate about people who are hurt, despite the boundaries, or politics, and I agree with you on that. And I certainly welcome your input in any discussion! I hope this clarifies that I am not trying to be a bigot or something.

My concern in my post is that my neuro TOS and many TOSers I personally know and talk to on the phone, got neuro TOS from their hard work on our current computer set-up in a typical office. That is what we believe and that is what some of my doctors (even a couple of the insurance docs) believe. Sitting in the position, not taking breaks and doing the texting AM, PM and weekends, I just used those body parts too much, even though they were small movements, micro movements, that made micro tears or micro injuries and after time it just swelled up and went straight up my neck and into my brain. There are times I lay and feel such swelling up and down in my head, feeling swelling like it is just bursting against my skull.

I worry that the two generations below me, or perhaps three now, are constantly texting for phones and gadgets, and work on top, using their fingers, and using computers in jobs that are typically 60 hours a week. My older daughter is now complaining to me that she is so tired after her work week that she cannot bring herself to exercise, and that headaches are becoming very frequent. She is very successful in her field, and I am proud of her, but I can't help but worry she may have a propensity towards becoming ill with this neuro TOS, or cubital tunnel elbow, or carpal tunnel or De Quervain's - those are all the injuries I saw frequently in my legal practice, but I never, ever, saw a case of neuro TOS.

So now I'm on a campaign, when I can, when I am not totally sick from neuro TOS and in horrific pain, and waiting for my home aide to get to my house to work some cream in...anyways, I want to get numbers to see where this neuro TOS is going, or where it came in - and I'm a very politically minded person, (I was very active before I became ill in writing our representatives, newspapers and talking before council boards, also belonged to several political womens' groups.) I want to do whatever I can to identify if there is a danger to our future generations from "the computer set-up" as it is, in most offices, now. Very quickly after I went "out" from my law firm, my law firm instituted voice software as a requirement for 200 attorneys, (estimate), and if they didn't want to use it, they had to sign sort of a release, I heard...but I tried the voice software and it did work for me - just too late.

If anyone has any information that would help me in this quest to get facts that we can use as a group to write for legislation, or for us to get on the news or a news-based show, to inform people about neuro TOS the same as people do about diabetes, Parkinsons, heart disease, etc.

Or, are we such a rare and unusual group, are there not enough numbers to validate that interest. I won't know until I see the numbers for myself.