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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Just found the forum! A late Hello to Texan0204

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Old 01-19-2011, 05:07 PM #1
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Default Just found the forum!
Hi all!
So here is my story...
Went to the doctor because I had veins showing in my chest down my left upper arm. They did a sonogram and found a clot in my arm, so I was sent to the hospital. They ran a WHOLE bunch of tests. It took them a week to diagnosis me with Paget Von Schroetter Syndrome (effort - venous TOS). They did a TPA/Heaprin IV which put me in the ICU. Doctors did a 2nd venogram which showed that the thrombolysis didn't work as well as they would have liked. Rib resection was done Feb. 2010, on warafin until May 2010 (Scars above and below clavicle) I still have random pains (warmth and coldness in the arm) from time to time. I have to go to my see my surgeon ever year now and have a sonogram of my arm every 2 years. FUN!
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Old 02-15-2011, 06:03 PM #2
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I just noticed the post by Texan0204 up in the TOS history thread...
So a late Howdy to you.
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Old 02-21-2011, 12:51 AM #3
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Welcome tex. It was so good that they got the clot. follow up is great. Sometimes after surgery a post op is all you see them.
Welcome to the forum and let us know how you are feeling.
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