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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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02-16-2010, 06:01 PM | #11 | |||
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Senior Member
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rant all you want. I understand.
TOS is tough to live with, deal with and get treatment for. Keep searching and asking questions. It's worth it when you find a morsel.
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(Broken Wings) . . |
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"Thanks for this!" says: | MarketRisk (02-16-2010) |
02-16-2010, 08:22 PM | #12 | ||
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In Remembrance
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Quote:
There are about 20 of us in So. California (US) and I must say I have never seen a doc who says they can free the nerves from adhesions - that gets into what I fear of those docs / PTs/ chiros who promise "cures". I understand the concept. I just haven't seen a successful case yet. Do you KNOW anyone who this has worked, cured, and they're back at work? I do not mean at all to be argumentative, it's just that this is a newish topic here, so let's keep talking about it, ok? Tell us more, if you can, and when you can. God bless you. We're all on this journey together... Tam |
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"Thanks for this!" says: | (Broken Wings) (02-20-2010) |
02-17-2010, 01:11 AM | #13 | |||
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Co-Administrator
Community Support Team
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I was thinking it possibly meant something along the lines of scar tissue adhesions...
not sure though..
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Search NT - . |
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"Thanks for this!" says: | (Broken Wings) (02-20-2010) |
02-18-2010, 02:32 PM | #14 | ||
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Member
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Quote:
I have been up to london to see a vascular dr today - im a little shattered so not able to stay on the laptop for long....i will email you over the weekend on the address you've given. There are a couple of other people on here from the UK who have really helped me out over the last year or so....we need to support each other where we can as the dr's arent always there to do it for us and friends/family may not always get it either! |
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"Thanks for this!" says: | (Broken Wings) (02-19-2010), MarketRisk (02-26-2010) |
02-19-2010, 12:59 PM | #15 | ||
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Junior Member
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Finding a good physio is key....when I was immediately post op (and before I ran into problems again with scar tissue), I saw a great physio near Reading. She told me that people in the UK need to look for physios with a qualification called MACP as this means they have done loads of extra training.
I've tried to put the website link below but can't but essentially the www you'd expect then macpweb etc should work or a google search will find it- if you choose central region, you can see who is close to Cambridge - seem to be a few working within NHS so you might be able to find out which of them specialise in upper limb problems and a few privately. Be interested in what you find out as I"ll be moving back to Cambridge in October and will need to find one too! hope this helps jenny |
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"Thanks for this!" says: | (Broken Wings) (02-20-2010), MarketRisk (02-26-2010) |
02-23-2010, 12:18 AM | #16 | |||
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Member
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i have a job now where i am required to smile for 28 hrs a week mostly on my feet. when i get home i have to practice rolling my eyes, frowning, and smirking so those other face muscles don't atrophy. i can't get used to standing up 8 hrs a day but i am hoping the podiatrist can help. so far none of this aggravates anything other than my feet.
some jobs may be beneath you, but give you the opportunity to stretch more often and have less computer work. keep looking for the job that will not hurt you. even if you don't find it at least you tried. look for ways to move beneficially when you get breathing spells. also, on the nerve adhesions. my pt explained that nerve glides are what treat this and prevent further adhesions. |
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"Thanks for this!" says: | (Broken Wings) (02-23-2010), MarketRisk (02-26-2010) |
02-18-2011, 09:09 AM | #17 | ||
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New Member
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Hi
I have been dianosed finally with Spinal Acce3ssory Nerve damage after having a lymph node biopsy. Took the docs 7 months to figure it out. I too ama candidate for the Eden Lange Procedure. Did you or anyone you know have the procedure done. I am 48 years old and just terrified |
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02-21-2011, 12:46 AM | #18 | |||
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Magnate
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Quote:
The fear is the scar tissue. It sounds like your work is just another day of reinjury. I have dragon dictate, but when working I have to edit and upload photos labeling them just too much to do when Dragon'ing. The nerves affected are coming off the spine, from the Cervical C4/5/6/7/8 & T1. THese become the three major nerves of the arm, Radial, Ulnar and Medial, all the way down to the finger tips, three feet away. THe neck does not discriminate to one side with TOS. When one side is affected the body is mirrored and will compensate on the other side. I found a lot of relief in flares with a medrol pak, steroids, and Toradol shot. I recently fell into the left arm and did the rocking in pain until the doc did the Toradol and medrol pak. BUT work habits have to change to help tone down the pain. There is no way to work through the pain without hurting yourself more. The heaviness is the nerve compression. If you raise your arms, the outlet area, behind the collar bone, infront of the first rib becomes compressed. This makes the arm fall asleep, tingle, feel heavy.
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