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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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03-12-2010, 01:28 AM | #1 | ||
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Senior Member
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I get rashes when I take some meds.....PCN, Sulfa, etc
I don't find that alcohol or novocaine affect me more, if anything they affect me less. (affect or effect ? brain fog, can't think right now) |
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03-12-2010, 01:56 AM | #2 | ||
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In Remembrance
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Ok, I was very tired when I posted, so I apologize.
The question is really that we need MORE pain medication than the usual patient. The medical trial is "why do a few (rare) patients need so much MORE pain medication than others? Why, if they are having dental work, do they need so much more novacaine or multiple drug relief in order to get through the session? So the questions they asked were: Did or do you have weird reactions to alcohol? Yes, I vomit, usually by the second drink. I stopped drinking by 21 because alcohol made me so sick. Other questions were about allergies in general - does codeine cause anything to occur? Yes, leg rash, itching, fat lips, swollen eyes. Same for any sulfa meds, some antibiotics, etc. The end result of this trial is that there is a rare group of people whose livers and metabolic systems do not intake certain substances like the majority of people do. Since they do not get enough to get pain relief (or any, because the body isn't using it right), they get tagged as drug seeking, or crazy. But with this new knowledge, one, we're not drug seeking, and two, if we can find meds that avoid the liver / metabolism issue altogether, we may get better relief and healthier relief over the years we have to take these meds. Two meds that avoid the liver would be Fentanyl and Dilaudid. This very allergic group must also use things like Milk Thistle (herb) to help the liver detox. So this has nothing to do with neuro TOS. This is just a rare disease that leaves a patient in pain with very few choices, much higher pain, and in a pretty hard spot since the majority of doctors don't know about the problem and don't believe the patient when they say "that doesn't stop the pain, it's still at an 8." Instead, they think we're making it up. So we still have neuro TOS. RSD. Fibromyalgia. Disc disease. Or, a broken leg, or a tooth to cap! It's something on TOP of the presenting problem. But I wondered IF there were more of these metabolic messes in TOS than the general populace. In my case, Dr. Brantigan in Denver was adamant that I had an additional immunological or rheumatological disease process going on - and now I wonder if it wasn't this that he was identifying! And still "this" doesn't even have a name yet, this is cutting edge research. (I wish I had an article to post or lead you to!) So for whatever it was worth, if to anyone, I just wanted to share this new info. as I do share all with you. And lately, the ins. co. has been trying to whittle down my treatment, medication, even diagnoses, by constantly papering us with Utilization Reviews. (California. I do not know if other states have them.) But we all must fight these URs because their goal is if they whittle you down to nothing they can then go into court and say, "see, he is perfectly normal and rehabilitated, there is no reason he's not working..." and they do it by bombarding you, your doctor and your attorney with URs that become too many for the doc to handle, or the attorney to have time to handle...so read up on TOSS and here and you are free to PM me with a question. It's getting really ugly with my case right now, and at a time that couldn't be worse considering my general health and those issues. But, God bless as always, we must support one another, with love and broad understanding. Tam |
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"Thanks for this!" says: | Jomar (03-14-2010) |
03-12-2010, 02:12 AM | #3 | ||
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In Remembrance
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Quote:
You're sounding more like the liver intolerant group like me. This would be a lifetime, born with it, type of disease. You need to take blood tests and keep an eye on your liver enzymes. Use Milk Thistle. The only meds I know of are the Fentanyl (Mylan) patches and Dilaudid so far. I try to find more. And use pain creams that you believe help you. (Again, avoiding the liver.) God bless you. Write soon. |
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03-14-2010, 03:11 PM | #4 | ||
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Junior Member
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There are four groups.
High metabolizer - body assimilates drug faster therefore needs more Intermediate metabolizer - needs to drop the dosage down to 1/2 or more. Slow metabolizer - Needs to drop down to 1/4 or more Poor Metabolizer - needs to not take any or at pediatric doses. If you want the name of the company who tests for this through DNA just PM me. |
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