Hi,

I am Mary. I am from Michigan. I had vascular tos 19 years ago and had a rib
resection. I have never been sorry about the surgery. It took the pain away.

Now 19 years later, I have vascular tos in both arms, a ruptured disc in my neck, tennis elbow, and a shoulder problem they have not diagnosed yet.

What I am wondering is: For the people that have has surgery for tos,
How many went back to there jobs? How many people started new jobs?

If you did start a new job what kind of a job where you able to do?

I am so afraid it is going to disable me.

Hope to talk to you all soon.

Thank you

Yooper

Hello & Welcome Mary,
Were you doing well for the whole 19 yrs? Did you still do any PT or be cautious with use during that time?
I'm wondering if maybe scar tissue might have slowly grown in and that is causing the symptoms to show again?
What kind of work do you do?

Sorry I like to ask questions LOL

Only a few that post here regularly are still working.

We do have some polls in our useful sticky threads, that might be of interest.
http://neurotalk.psychcentral.com/thread84.html
posts # 17 & 18 , many of the other posts there have good info too.


Many of us have had spread of what we think are related issues.
shoulder, neck, low back, hip muscular or myofascial type pains- for me I think it is a myofascial spread

If the postural aspects are a factor - head forward, shoulders hunched or forward, or rounded, uneven?
That has to be addressed as it all contributes to crowding/closing the area where the blood & nerves run, and that could be causing some of your symptoms now.

Mary,

welcome. I was going to say that we did do a poll on that as I had that question I think about a year ago?

I had the surgery in '06 and although I still have horrific pain, the headaches reduced to nothing for 1 1/2 yrs. (back now) and now I have all symptoms back, but the RSD / CRPS has declined almost to nothing. I feel the surgery stopped the nerve damage from spreading or being so active.

I also do not regret the surgery I had with Dr. Annest in Colorado.

Hi Mary,

I am a no surgery TOS and RSD'er and have been disabled by it.

Remember most of the success stories are off living their lives, so don't be discouraged if the 'bad' cases outnumber the 'good' ones here.

You made it through this before, my prayers for you to do it again !