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| Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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04-03-2010, 05:54 PM
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In Remembrance
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I am getting the most pain relief I have had since this whole thing started 8 years ago.
Why? Because I found a pain mgt. doc who believes in me, and together we have been trying different combination of drugs and doseages until I've found the best ones for me, the least toxic, the least that cause allergic reactions. I tried to taper down and I woke up last week with my arms burning like fire and I wanted to scream out in pain and the TOS pain was at a 10...so it's not time to taper down. But at some point, my nerves will take this time of less pain and start to heal themselves and I have faith that some day maybe I can live with less drugs. Until then, I need the pain relief in order to be human. I still live with pain from 6 to 10 each day - but it was at 9 for many years...and I was hopeless. I believe the creams with Soma and a tiny bit of other additives is a key also. But when one has had this condition for as long as I have, my skin has grown thick, and I don't have to respond every time a doctor or even my own family or attorney doesn't respect my illness. It takes my energy away from my ultimate goals. I am learning. I remember two hand ortho specialists telling me there was no way an injury at my neck, (the thoracic inlet / outlet), could cause any disability whatsoever to my hand! What dumb, dumb docs. And then my adjuster went doctor shopping when her first two docs said, "industrial injury, she needs treatment (and gave a long list.)" She then started papering me with appointments with other docs of the same specialties, and because my attorney was a real horse's behind and didn't take any action to stop her, I kept going to these multiple exams and had doctors tell me it was psychosomatic, etc. If only I could be my own attorney (which we can't, we don't have the strength), I was such a good attorney I would've been filing for expedited hearings and tacking on motions for frivolous actions by the ins. co. and asking for money sanctions...I simply do not understand the lazy way the majority of attorneys handle our cases. Yeah, I went from earning a LOT of money, traveling all over to top resorts, and paying for my girls' college to decide to take a "vacation" and "pretend" to be sick...I think I am the honest-to-God best most incredible specimen of proof that this RSI is NOT psychosomatic because of all of the goodies I had to lose in order to be sick. Not to mention my wonderful career - I LOVED it, and had NO educational loans! Our country - in fact, the world, needs to accept that the computer ergonomics and additional office hardware and software, along with our LONG hours, ridiculous expectations of our bosses or national productivity, coupled with raising families and using home texting devices and machines, is TOO MUCH for some of us to handle physically. Like the canaries in the mines 200 years ago, we are dropping like flies and we are trying to say, "stop this insanity, or you might get sick, too." I got sick at 42. Long before I accomplished my later goals of political work and school board work. I had a lot more to give. European countries do not treat their workers like this - we must learn a new way, but we are so ahead of the learning curve, I don't know when the working world of the US will catch up...it is disheartening, and I do so fear for my own kids' careers and health. I give what I have to you guys now, when I have the strength, so if anyone gets hit by a Utilization Review where they are trying to chisel away your treatment, PLEASE EMAIL and PM me so that I can help you ASAP, as your doctor and attorney must act fast - these URs are timed, and we can't sit back. What is so amazing is that the CA legislature allows the ins. co. to each create their own UR process, so we can't even say for sure how many days each UR has for response - it makes it harder for us workers to unite to fight them! Can you imagine that no one has noticed this but me??? (I just read the latest law this week, and it is a far cry from what was first proposed way back when I thought these were only going to be used for surgeries. Now they are used for EVERYTHING. every pill. every treatment your doc thinks is necessary. At some point, the docs say, "to hell with this, I'm going to non-work comp patients. Can we blame them?) I still haven't gotten any response to my pleas for media attention, but I will not stop. I have two articles written and ready for publication by the media. I am not seeking money. There are two many injured workers NOT getting their proper care, and it's an injustice!!! P.S. Last week I could barely talk or walk to the toilet. Today is a good day, but they are few and far between. I need everyone to keep fighting - the ins. adjusters WANT us to become discouraged and quit and use our Medicare or families instead of fighting to keep our work comp. So what if they insult us? Come here and we'll patch you back together. Thank you so much for your support - all of you! And don't be surprised if an ins. adjuster drops in here to lay a few word bombs...I am now positive we are monitored to see what we're up to. We're up to FIGHTING. |
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| "Thanks for this!" says: | thursday (04-14-2010) |
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04-05-2010, 03:46 AM
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Senior Member
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Hang in there, hon !
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04-14-2010, 02:31 AM
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Member
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I admire your fire! Makes me want to march on the steps of (california) lawmakers with you!!!!
 You are a brave person and we are lucky to be counted as part of your support circle. What can I do to help the fight? I'm in California too.
__________________
I'm trying to do good for people tango-ing with RSI & Workers' Comp by blogging it out. Please drop in . . |
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