Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-01-2010, 10:59 PM #11
tossucks tossucks is offline
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Wow, coffeelover, you have been through ALOT. I really hope this works for you as well, and you are able to move on with a better life now, tos free.
I did not even know that doctors ever removed the second rib for tos. May I ask who your surgeon was?
Wishing you the best in your recovery!!!
cheers,
Jay
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Old 10-20-2010, 09:16 PM #12
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I am so grateful that I found this forum!! I have been looking for months to find post op experiences... until now, I'd found nothing but scary pictures, old medical research documents, and a vague "what to expect" article from the hospital that I'll be in (2 1/2 hrs. from home.)

Transaxillary first rib resection is scheduled for the 22, the day after tomorrow. Thanks to finally finding this site I finally know what to expect. Now, I think I'll go out for a longgg drive, iron what clothes will need to be ironed in the next few weeks, and appreciate the last time I can shave my arm pit for a while.

Thanks again for sharing your experiences. It really helps to know that I'm not the only one that is going/ has gone though this!
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Old 10-21-2010, 05:29 AM #13
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Try Serrapeptase before surgery maybe

http://neurotalk.psychcentral.com/thread135530.html
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Old 10-21-2010, 11:53 AM #14
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Quote:
Originally Posted by kap87 View Post
I am so grateful that I found this forum!! I have been looking for months to find post op experiences... until now, I'd found nothing but scary pictures, old medical research documents, and a vague "what to expect" article from the hospital that I'll be in (2 1/2 hrs. from home.)

Transaxillary first rib resection is scheduled for the 22, the day after tomorrow. Thanks to finally finding this site I finally know what to expect. Now, I think I'll go out for a longgg drive, iron what clothes will need to be ironed in the next few weeks, and appreciate the last time I can shave my arm pit for a while.

Thanks again for sharing your experiences. It really helps to know that I'm not the only one that is going/ has gone though this!

Best of luck on your surgery, I hope you found all the info you needed here. Did you find the pre op preparation tips and ideas? There's some posts about that too.
prepared meals in freezer, easy clothes to get on /off, lots of pillows & /or recliner for sleeping the first few nights? etc.

Let us know how it goes when you are able to.
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Old 10-21-2010, 12:20 PM #15
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i think we need to try more conservative choice, because surgery is dangerous and not a cure


Here a study for CTS with Serrapeptase (same problem as TOS but only on wrist)

This study was planned to assess the response of Serrapeptase in
patients with carpal tunnel syndrome (CTS) ====> Same mechanism as TOS !!

Twenty patients with CTS were evaluated clinically. After baseline
electrophysiological studies, these patients were given serrapetase10
mg twice daily with initial short course of nimesulide. Clinical and
electrophysiological reassessment was done after 6 weeks.


Mean age was 43.9 years with male to female ratio of 1:2.33. Sixty
five percent cases showed significant clinical (13/20)
improvement which
was supported by significant improvement in electrophysiological
parameters. Recurrence was reported in only four cases. No significant
side effect was observed.
===== > 9/20 were saved with no reccurence and the 4 case can try again + very rare side effect not like surgery !!

CONCLUSIONS: Serrapeptase™ therapy may proved to be a
useful alternative mode of conservative treatment. Larger study
may be further helpful to establish the role of Serrapeptas in CTS. Don't know how but it work !



Please try it 3 mounth, better prevent than being sorry specially in tos !

Last edited by boytos; 10-21-2010 at 06:27 PM.
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Old 10-27-2010, 06:28 PM #16
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When did you realize it was a success? I am considering it on my right side (I have it on both sides but right is much worse). My surgeon gives me a 50% chance of improvement.....thanks for the info.
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Old 11-19-2010, 11:02 AM #17
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Quote:
Originally Posted by tossucks View Post
Wow, coffeelover, you have been through ALOT. I really hope this works for you as well, and you are able to move on with a better life now, tos free.
I did not even know that doctors ever removed the second rib for tos. May I ask who your surgeon was?
Wishing you the best in your recovery!!!
cheers,
Jay
Hi Jay,

My surgeon was Mr Paul Wilson. He works from Royal Lancaster Infirmary in England.

Iv just been for my post op and although the pain is better i still have circulation problems with my hand going blue and purple. I have to ' live with it' now, great eh!! At least my pin is dramatically reduced.

Lisa
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"Thanks for this!" says:
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Old 11-19-2010, 11:02 PM #18
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Still hoping that things improve for you as time goes on and your body heals.
Cheers M8,
Jay.
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Old 06-26-2017, 03:03 PM #19
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It is now 7 years on from my surgery and I have to write to you all saying my second rib removal never worked either. I ended up being told by Mr Wilson that there was nothing else they could do for me and I just had to learn to live with it, which I have, adapting my life accordingly and to minimise pain. Very sad that i went through all that after surgery pain twice for nothing! xx
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