Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-01-2007, 05:53 PM #11
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Here is one of many that bring up gangrene.

http://www.guideline.gov/summary/sum...=4211&nbr=3219
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Old 02-01-2007, 06:09 PM #12
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Hey Again,
A Neurography will show the main nerves that come from are spine but it does not show the sensory nerves. This should be ruled out in my hairdressing opinion.

I personally had to have surgery on the main nerves themselves. The nerves can heal about a hair width a day. Is their anyway you can get a Neurography done? Hugs, Roz
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Old 02-01-2007, 08:28 PM #13
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Default Another thought

Something else to conside is they ahng the arm from a torniquette sling when in surgery. ALready ionflamed nerves are having blood stopped, hang up at a angle that aggrivates, and then is being stretched too...so many it is just am matter of healing time from the post op.

I am not sure who it was but did receive nerve damage from the sling during surgery. Hope you feel better,
Dianne
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Old 02-05-2007, 05:04 PM #14
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Hi Di,
-------------------------
I do want to take a second and say, I'm very very very sorry for your loss. I know everyone here can say that, but for most it's hard to know how you're feeling. It's unexplainable when you lose a child. You have so much support here. Please feel free to vent on those good and bad days. I'm sure many people here have lost someone that they love and can offer support. If you are looking for an additional support group, I know that Compassionate Friends may be a good place to start.
-------------------------
Boy, if I'm still healing, it's been 2.5 years. I had the surgery in 8/04. I'm almost positive it's the radial nerve that has been damaged. When I spoke with my surgeon today, he agreed that's probably the culprit. But, I'll be going to see my vascular surgeon on the 20th. I switched vascular surgeons because I wasn't happy with the first one's bedside manner. So, my new surgeon is going to do an MRI and see if my first surgeon didn't cut all of the appropriate tendons/muscles he should have during my surgery. Oh joy, won't that be fun if they need to go back in and remove scar tissue and remove muscles!
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Old 02-05-2007, 05:15 PM #15
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Hi sorry to hear you have issues post op.

The under the arm pit surgery or above the clavicle, just depends on where the compression is. There is no one right approach. Either is still widely used by the top docs. Again, it depends on compression sites.

Be careful with cutting off your blood flow to the arm, it can clot at any one time if held in place too long.

Good luck with your new vas doc.
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Old 02-05-2007, 07:34 PM #16
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dealingwithtos,

Someone posted a while back that her husband had TOS surgery a few years back but was having lots of pain and they found that the surgeon had not removed the "PERIOSTEUM" (and the 1st rib was growing back)....the posting said Dr. Brantigan said by removing this WOULD prevent the 1st rib from growing back.
She said the Dr. B. used a CT sprial scan to determine the problem.

Hope this helps....

Her post name was Erin

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Old 02-05-2007, 08:16 PM #17
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Default Periosteum

Just my thoughts, putting it out there....

Removing the PERIOSTEUM, is something that is done by doctors generally, it is a landmark they look for to cut beyond.
I think that it is juat rib stump regrowth, no one can control it.

THe Periosteum is a notch or part of the first rib near the sternum perhaps, it is found that if this is left on and not removed the tip of the rib can regrow.

My daughter had a top surgeon , absolutly noted in surgical notes , did remove the rib to past the periosteum, but the rib rounded out at the tip. I think there is a greater possibility of rib growing, not guarenteed, then because the point of removal was not made.

Many times I hear of rib regrowth, but it really is not the surgeon, all protocol is followed; it is the body healing?

The same thing with adhisions, or scar matter, just beyond our control. Even with use of Adcon-L, using pericardial patch to wrap the nerves, just our sucky bodies response.

I can;t figure if they can do orthoscope on the knee and gall bladder, why not for TOS TO reduce truma to the area? Less chance of bleeding and scar matter?

I can look in Dr.Sanders book and see what he says about regrowth, or ask Dr.togut about it. There was some note on an xray my daughter had several years ago, If I can find it from Dr.Fried I will edit and include what he states about the findings.
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Old 02-05-2007, 08:39 PM #18
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I THINK OF THE SAME THING ALL THE TIME WITH SCOPING...

By the way,
You are one beautiful woman if thats YOU in the photo?

Expect something in the mail soon.

Having a hard time with the heat here in So Cal.
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Old 02-05-2007, 08:50 PM #19
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Quote:
Originally Posted by olecyn View Post
I THINK OF THE SAME THING ALL THE TIME WITH SCOPING...

By the way,
You are one beautiful woman if thats YOU in the photo?

Expect something in the mail soon.

Having a hard time with the heat here in So Cal.
You are a dear friend, LOL, on most days I do not look, nor feel I look that good. It has been tough times....Katie took that picture this morning.

But, about that heat, It was 5* for a high and wind chill of -21* below zero today, more of the same tomorrow. By Friday we expect a heat wave of 20*!
So I could expect a little heat in mail my friend, lol.
Love ya
Di
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Old 02-05-2007, 09:29 PM #20
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Default DI

We are leaving for Michigan Thurs...
It was a gift from my daughter at Christmas to spend with my bro on his 55th BD.
He's thinks we are so stupid for coming
And why did she give us the gift for them to fly out to 80 degree weather.

Hey, cold is what my body does well in
So the deep freeze will be good on me.
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