Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-06-2007, 10:13 AM #1
ihtos ihtos is offline
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Default If you traveled to see a TOS specialist?

Hi, I have a couple questions.

If you traveled across country to see a TOS specialist in DENVER to be evaluated or to have surgery, were you happy with the follow up care? Did they return phone calls, emails etc. promptly?
Also did you have another doctor after you got home for any problems associated with the surgery to turn to for help?
It's quite intimidating to think of having surgery so far from home, especially if you have problems which it seems alot of you have had. Thanks in advance.
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Old 02-06-2007, 02:01 PM #2
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Default Hi,

I had surgery in Denver by Dr. Sanders. I only live 150 miles away but it was too far for me to go back and forth for post surgery care. He made arrangements with my PCP to help me with any pain meds and problems I might run into. He gave me prescriptions for pain meds himself but my Dr. had to change them to what I could take and he kept an eye on my cut and everything else. They both took care of my PT. Dr. Sanders gave a list of the PT he thought would help me and my Dr. kept me in it as long as I needed by watching how I was doing with it.

Dr. Sanders emailed me and called me to check on me. I had surgery by him again in 2005 and he just called me in Oct. of last year again to see how I was. He's a very nice man. He came into my room on Halloween with a woman's red wig on to get a laugh out of me.

I was happy with all my care from him and he knows what he's doing.

Ada
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Old 02-06-2007, 04:30 PM #3
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Thumbs up you ARE worth the trip!

Likewise with Dr. Annest. He was great about answering questions, returning phone calls and his staff awesome about staying in contact via phone and email. They are accustomed to patients who have to travel and coordinate a multitude of appointments, tests and flights.

Before I went out, I asked my PCP and PT people if they would mind working with and taking direction from my surgeon. Everyone was fine and cooperative with my request. Actually, they were happy to learn about this from the Denver Docs and PT/Pain Mgmt crews. Kinda like some free OJT!


I had some complications and again, all teams (Denver and FL) took direction from Dr A and I had apropreate medications and therapies. Now that I am in GA, I'm still 'asking' Dr's if they would 'mind' doing what my surgeon recommends. I think phrasing it like that takes the heat off, as if to politely say "I already know you don't know about this, so don't try to pretend like you do."

Don't mean to sound harsh. but I guess after having 1 FL Dr 'pretend' thru a surgery... I learned that while, yes, traveling for surgery IS intimidating, it's fool-hardy to NOT travel. This stuff is too serious and too important not to go to the top.

Anne
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Old 02-06-2007, 09:41 PM #4
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Thanks to Dreambeliever and Astern both for for your answers. Nice to hear such Doctors exist!
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Old 02-08-2007, 02:56 PM #5
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Any replies about Dr. Brantigan anyone>?
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Old 02-09-2007, 11:29 AM #6
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Default Hi

I had TOS surgery by him about 8 yrs ago and I am doing great! A Top surgeons in the nation magazine came out and he is again listed in it.

This subject has caused many fights on here and I don't want to cause anything, but since you asked, in my opinion, (don't everyone get their undies in a bundle over this) but I think he's the best choice. He has more long term success rates then any doctor for TOS. If he doesn't feel you have it he will send you to anthoer doc that may be able to help or do labs abnd tests to make sure what is going on.

BUT you have to let him do his job. Not go in thinking you know more then he does about it. If one travels so far to seek a DX from a top doctor, let him to do it. List your symptoms, & let him tell you what he thinks.

If you want, PM me and I will give you a number of fantastic success stories of people who would talk to you.
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