Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

 
 
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Old 06-13-2009, 05:34 PM #1
mrscalmplexus mrscalmplexus is offline
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Join Date: Jun 2009
Location: Hartford, CT
Posts: 4
15 yr Member
mrscalmplexus mrscalmplexus is offline
New Member
 
Join Date: Jun 2009
Location: Hartford, CT
Posts: 4
15 yr Member
Smile Hi everyone, im new

been debating wether or not its a good idea to join up on a forum but i am really looking for support and people to talk to about tos, been in pain and seeking help since 2001, im at last resorts here and contemplating surgery (if im told it could help), i have a bunch of questions and would like to talk to people who have really been thru what i go thru.
long story short
currently on w/c and waiting for authorizaton to see surgeon for rexamination and to possibley have surgery, havent seen him since 2006.
first time he sent me home to have other tests to rule out some other things and have since had mri that shows narrow scalene triangle?? (unsure if this is relavant) but basically i have good and bad days. using my arms and hands gives me flare ups and so does rain and cold damp weather which gives me crazy burning pain in my neck down into chest, arms and hands,
i have a high sed rate, and the only things that help me are numbing myself in freezing cold water, ice packs and 800mg of motrin at least twice a day as many as 4 times a day
i am completely unable to work, drive, and have to limit myself in all sorts of activities.
i am married, no kids yet 28 years old and i just want my life back. or at least get enough help to be able to live with this and help out my husband. but most important, to the both of us is to be able to have children. on most days i cant even hold a baby for minute. nevermind do all the things that come with caring for an infant..would love to be able to do things without help if possible...

i understand i may not be able to but im not ready to throw in the towel yet

ive signed up on braintalks also, and was given a bunch of useful websites to check out, and id really love to chat with people i can relate to.

thanks for taking the time to read this, id love to hear from you!
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(Broken Wings) (06-14-2009), Jomar (06-16-2009)
 


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