I would highly recommend Dr. Molina in MN.

I read through some posts on here and saw people discussing treatment options, side effects, and recovery time. To be clear...Dr. Molina is literally writing books about new treatment options for TOS (his nurses gushed about him). In my case, which he claimed was one of the worst he's seen I had no permanent damage/side effects (other than two scars from surgery) and I recovered fully in 10 weeks.

He's an old polite and funny man. He keeps trying to retire and then calls it off because he loves what he's doing too much. He's primarily a surgeon who specializes in TOS, but surgery may get bumped if he's called to do a heart transplant. When I was told that before my surgery, it put my nerves at ease as thoracic surgery should be childs play compared to a heart transplant in my opinion.

Oh, and he doesn't believe in sending other docs in his stead. You get Molina, always...and he's damn protective. Heaven help my radiologist who crossed him, he made him apologize to each member of my family, to me, and to my nurse just for being extremely behind schedule.

Best of luck to everyone's health.

Here's my guy in Arizona... Dr. Randall Grace who works out of John C. Lincoln North Mountain Hospital.

Dr. Dean Donahue
Mass. General Hospital
Thoracic surgery
55 Fruit St.
Boston, Massachusetts

dr dean donahue
 

He is wonderful. He did my surgery two weeks ago and I just can't say enough about him and the staff at Mass General. The entire process from office visits, imaging and all through the recovery stage runs like a well-oiled machine.
Dr Donahue is very different from many drs that I have dealt with who are somehow more important than thier patients and have an almost celebrity-like demeaner, like you can never speak to them but leave messages through a nurse or receptionist. I was so shocked that one evening Dr Donahue himself called me and talked for 20 mins just answering questions and explaining things. He always makes himself available and really takes time. Today for example, he forgot to give me a script and called me (again himself) before I had left the parking garage. And he sent it to my pharmacy himself! Unheard of!
His knowlege of TOS and his surgical skills are amazing as well. He has written many articals and teaches on the subject all over the country. He is very upfront and honest and very conservative, and will not recommend surgery unless he feels that you are truly a good canidate.
If at all possible, GO TO MASS GEN!

IPA List Updated!!
 

It looks like the Institute of Physical Arts List has been finally updated. this is where Art Ando studied and a few members have found PT's on this list that have helped them. I encourage everyone to post their PT's that have helped them.I post this list so often so that people can find help in their areas.

I see Drs Lim and Mather listed in IL but would like to hear from a patient
 

These Drs are listed how ever in could not find posts from patients that have visited them does anyone know of someone with personal experience with these Drs? These Drs are about a 90 minute drive. I am looking for a dr who is experienced with this condition as none of the Drs I have seen previously seem to have been. I have been suffering with symptoms that seem to fit the bill of neuropathic TOS but I was shuffled from Dr to Dr and finally relegated to pain management and I am hoping to find a physician on my own insurance that can help. I was managed by workers comp when I was sent on the dr shuffle so I had no input on where I went.

Where are you located? Not sure which list you are referring to. Are you looking for Pt's or Surgeons or anyone? The IPA PT's seem to have knowledge of TOS. Unfortunately you may have to drive to find a good one. My PT is 50 miles away. But they can give you exercises to do at home so its worth it. There are several surgeons on the lists that people here recommend.I would start a new thread on the forum, with your location and what type of dr. you are looking for so others can see it and recommend.

Thank you for your response.

I am located in Northwest Indiana, Chicago is not all that far away. I was referring to the two Drs in the title of my post which were in the Chicagoland area from the dr list. I am wiling to travel if needed. I did post an intro/request for info in the main forum.

Feel free to add any new Doctors or PTs that you come across, as the state by state listings were mostly compiled in 2006/2007.

I'm sure new MDs & PTs are coming into action as others retire, so please share those names & contact info with us.

Kentucky

Dr. Linker
4003 Kresge Way
Louisville, KY 40207
502-895-2295