[ladylaura418]

Dr. Donohue at MGH Boston has been great thus far. He met with me for an hour and a half for my consultation, and he has been very responsive over the phone as well. Dr. Donohue is a cardiothoracic surgeon but has told me that he does not want to do surgery before ruling out all other options. As a single 24 yo working to pay back extreme college loans, I appreciate that he does not want to do surgery yet, if at all.

Catherine Wee, an OT at Spaulding Rehabilitation Hospital, was also fabulous. I saw her for several appts, but my condition continued to worsen. She is down to earth and compassionate. When I had been referred to other doctors around the Boston area, she called me after a couple months just to check in - I really like her, but I'm just not in a place where PT is helpful.

[nicinboston]

Originally Posted by ladylaura418

Dr. Donohue at MGH Boston has been great thus far. He met with me for an hour and a half for my consultation, and he has been very responsive over the phone as well. Dr. Donohue is a cardiothoracic surgeon but has told me that he does not want to do surgery before ruling out all other options. As a single 24 yo working to pay back extreme college loans, I appreciate that he does not want to do surgery yet, if at all.

Catherine Wee, an OT at Spaulding Rehabilitation Hospital, was also fabulous. I saw her for several appts, but my condition continued to worsen. She is down to earth and compassionate. When I had been referred to other doctors around the Boston area, she called me after a couple months just to check in - I really like her, but I'm just not in a place where PT is helpful.

Hi LadyLaura,
I am a patient of Dr. Donohue as well - he was the one who finally did the right imaging and confirmed I have compression in my thoracic outlet. He recommended a scalene Botox injection for me but we're still working on getting insurance to approve. I too have been really impressed with Dr. Donohue's approach - he seems genuinely interested in helping deal with this condition and was really thorough in our consultation. Best of luck to you!

[Scaredsilly]

I have read this entire thread and may have missed it accidentely but I saw one doctor listed that someone recommended for a VTOS/ATOS surgeon in New York.

Id think since New York has such a high population and is very well known for their good doctors that im not sure why I am having such a difficult time finding a fantastic doctor her In NEw YORK. Anyone recommend any? Thank you !!

[Jomar]

Many of the state by state listings were compliled in 2006, a few have been updated when new info was mentioned, but not many.

There really should be some new Drs and surgeons coming along - we hope!

Please add to this list if you do find some good ones.

[rbn4jsus]

http://www.mysurgicalgroup.com/Thora...tSyndrome.html
Dr. John Collins Jr.
Kalamazoo, MI

*Runs a TOS clinic locally.

[chel1017]

thank you for the list. I've been referred to wisconsin, I live in Louisiana.
Can't afford the trip. So maybe the dr in shreveport could help, alittle far from home but not as far as wisconsin.

[jkl626]

http://www.instituteofphysicalart.com/ipa/referral/list

This is where my PT studied and was certified. He's great, but dont know about any of the others.

[Iris]

i have a consultation with dr donahue in a few weeks. I wonder why he is not on the master list. also does anyone have any experience with others in ct besides dr low? what about at yale or in new york city?

[Jomar]

I see you found the sticky thread, the master list was originally made in 06.

There are new names coming up recently , hopefully the members that find the good drs/surgeons / PTs will remember to post the info here.

I guess no one had thought to add his details & contact info here yet.

[Limoges]

Iris, Dr. Donahue is great. I hope your visit goes well. I don't understand why he's not on the list either.