Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-19-2007, 10:17 AM #11
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Hi Everyone.

I wanted to put my 2 cents worth in on this thread.

The very very most important thing that I've lost is the fact that I can't snuggle with my husband or even get a nice hug because of the pain. I feel that I'm letting him down - oh that sounds horrible. I feel like I struggle to just give him attention. What's even more wonderful is that he doesn't complain or ask for anything. From what I know now, this is chronic and will never go away... I was also just told that I probably also have RSD.

I also have a MRI tomorrow and I hope it's good news. I could really use good news.
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Old 02-19-2007, 02:16 PM #12
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Ada , I don't really do anything with my horse except feed her and work her in the paddock with out a halter usually.
the horse whisperer thing LOL.

she hasn't been out side of the barnyard {1 acre} for years except when the vet came once and once when the gate got left open.
but she stayed right in the yard anyway.

You could think about a mini?? if you just want to pet, feed and look at it? they can pull a cart too.
it could even go into the house LOL
brothers and I took our baby pony into the house once just for the heck of it.

My awesome first horse was a palomino he looked like Trigger & Mr Ed. Beautiful Golden with a blaze down his face.
I rode him without a bridle a couple of times- we used to jump 5' high, solid logs on trails, run through little ponds splashing the other friends riding with us.
he could even scent track his "girlfriend horse" we would play hide and seek in my grandpas woods and he would put his nose to the ground and track her down every time.
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Old 02-20-2007, 01:05 PM #13
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I too used to be into backpacking and camping. I had actually planned on either a 7 day trip on the appalachian trail this summer, or a 7 day canoe trip up in the Boundary Waters (MN and Canada border). Barring a miracle, I won't be doing EITHER. I can't help but feel like I'm letting my daughter and wife down, since i have a hard time picking up the baby and even holding her while i'm standing up. At first, I thought I was doing well with dealing with all this stuff, but it just seems that as time goes on, more stuff piles up, and it gets tougher and tougher to deal with. sorry to ramble.....just trying to put into words what i've been feeling the last couple of days.
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Old 02-20-2007, 01:31 PM #14
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I’m so glad that everyone has been able to place there memories and hopes into this thread. Everyday that goes by I still feel as though I loose precious days, days that could be the best years of my life. I know that we need to morn our past and accept our future but those are hard to do. It can be so difficult some days to accept.
Yet there are those that can hold onto hope, hope that one day everything will work in there favor and life will be normal for them again. I was once one of those people. Please don’t get me wrong, I still hold onto hope, hope that one day one of my procedures will work and will help improve my condition. But I do know that I will never be the same I once was before this all started.
I guess I am having one of those days today... One of those feels sorry for my self days. Because I want to go out and have a good time with a group that has gone and here I sit because I can’t participate in the activity anymore. I will learn to adjust my life style and I am grateful that I can still enjoy a few fun things.
I hope that everyone has a wonderful low pain and hopeful week.
Many Hugs
Dawn
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Last edited by dawn3063; 02-20-2007 at 02:33 PM.
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Old 02-20-2007, 02:10 PM #15
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I have so much I want to say on this too....But after reading this all I can do is cry today................I miss my life sooooo much, I'm a doer, now I'm just in pain. Sorry to be such a bummer. I guess it's a bad day for me.
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Old 02-20-2007, 02:41 PM #16
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I am so sorry that your day is not going well.. We all understand what those days feel like..
Just so you know were all here for each other..
Many Hugs
Dawn
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Old 02-20-2007, 03:02 PM #17
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Ok here we go.. a distance told my you've been a police but it covers Delaware save.
without trying again Nell
I just installed my a IBM ViaVoice software after two years of not using it so I haven't done a lot of training of the Viet the less by the first part and some words are prepared be totally screwed each and the galley but this does this may be guests will get a laugh about what is it.
I guess all have to speak a little slower so it can and understand me better and tell we reach an agreement I am still fighting with it right now !
I don't know how how much memory /ram you have your computers ? have 512 K but this program slows things down pathetically.
don't spend too much time trying to figure out the first paragraph- I was just rambling on anyway
0h we're doing better now.
well now that I was distracted with trying to get the words on right I forgot my point was going to be-

basically I guess it's to do the best with where we are at and do our darndest to keep from getting worse.
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