Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-19-2010, 08:31 PM #11
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yes like clawing
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Old 11-23-2010, 01:57 AM #12
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the other day for the first time my scapula locked right up good thing it happened while i was at physio(they were able to unstick it ) , what troubles me is that each and every time i lower my arm to my side it will go purple or blue sometimes grey if i leave it there for any time i know this is a venous issue but could it be something else also it feels as if it going asleep but not , i really want to get back to all the things i love to do my goals now seam so far out of reach i know i have the abilities but concerned if i try anything i might cause further damage and what if i go to the doctor and he can cannot find out what going on i hate just being pushed on from one doctor to another very down in the dumps
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Old 11-23-2010, 12:15 PM #13
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Hang in there and keep reading as much as you can about anatomy - nerves, blood, muscles- and symptoms relating, and you might find what might be at the root of what happened to you.

I know it is tough to not get down in the dumps
- but it seems to me that something must have got torn or overstretched and it just might heal in time if nothing messes it up and no complications set in.

The nerves tell the body how to respond so maybe it is the nerves partially affecting the blood/color do the arm also...

I don't know how deeply the drs have looked into all of that for you....
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Old 11-23-2010, 07:43 PM #14
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was at the walk in today with my son and the doctor there said i have sub clavacul vein sydrome , paget shroeder is this a form of tos can any one tell me if this is fix able or ???
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Old 11-23-2010, 11:19 PM #15
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Yes it's a form of TOS, some call it by other names.

paget schroetter syndrome
http://www.google.com/search?q=paget...9933d19f024e3b

[How is this condition diagnosed?
It usually will come to attention by causing dramatic swelling, blue discoloration, congestion and pain in the affected arm. The diagnosis is then made by testing the vein to see if it is clotted or narrowed.

Ultrasound machines can determine if the vein is clotted in the upper arm. Occasionally they may miss a clot in the area beneath the collarbone or inside the chest cavity.

Venograms are tests where dye is injected into the veins and then X-rays are developed to show the flow of blood within the vein. The venograms are more accurate than ultrasound in showing the condition of the veins inside the chest and under the collarbone. These tests are considered the "gold standard" in testing because they are the most accurate. ]
http://www.surgery.ucla.edu/vascular...hroetter.shtml


Something to look into-
this guy has some interesting videos about body work treatments-
http://www.youtube.com/user/daltonmy.../6/gHoBVqbClP8
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Old 11-24-2010, 01:32 AM #16
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it says clotting but my doctor when he intially saw that my arm was blue and swollen he ran some type of blood test which came back negative so is it possible i just have the symptoms because of compression? i hate the medical system here in canada its been since august 30 of this year that this accident at work happened and my arm has been blue since and my scapulla has been very sore . to all the others here on this site i feel for you guys
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Old 11-28-2010, 11:55 PM #17
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my face keeps going numb is this because of my toss
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Old 11-29-2010, 12:58 AM #18
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Your whole face or one side mostly?
Do have TMJ? jaw misalignments?
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Old 11-29-2010, 01:18 AM #19
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Post Desperately seeking neurologist

With all the wild symptoms I have (sleep apnea, severe depession, braial radial pruritis, restless legs, fibro, etc.) I have decided to just throw in the towel and find a neurologist who can "put it all together". I understand that neurologists have specialities within their own area. Has anyone had any success in finding a good neuro - or can you suggest which area/specialty I should be seeking? Am desperate - ready to rip the itching skin off my arms. Seems the only way I can get to sleep is to heavily medicate with a variety of stuff.
Any help from my fellow sufferers?
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Old 11-29-2010, 04:16 AM #20
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Quote:
Originally Posted by Jo*mar View Post
Your whole face or one side mostly?
Do have TMJ? jaw misalignments?
no its almost like you just come out of the freezing cold and your checks have that weird feeling thats what my face feels like also my left side of my neck become swollen , i really getting depressed about all these symptoms i have gotten since my injury i am the type of person that reads into things to much and and worry to much that it shows symptoms of worse diseases out that such as als and ms which my doctor has said i do not have but so many of the symptoms are like those diseases and really i never had any blood work other then check for a blood clot or neuro scan, i had a x rays on my spine and m.r.i just on my deltoid area looking for rotator cuff he just basing it on my injury at work brought on the symptoms by closing a freezer door jarring my arm and causing a severe pain in the middle of my back and should blade it litterly dropped me to the ground and i am a martial artist so i know what pain is and that was like a sledge hammer will be see a vascular doctor in a month but i am a worry wart
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