For this type of surgery? Oh man say it ain't so. Have you had this done Jo?

Unfortunatly dealing with it from a pediatric side i have heard it is much more difficult to get proper medication from a pm dr. I think your best bet is going to be your primary care dr. Unfortnatly many of these surgeons have a history of slice and dash..after they are done with you...the follow up sucks. You are going to need to do your best to sit down your parents and express yourself to them....that they must hear you..and understand. Past that, jomars advise about building a relationship is good advise. That is where your primary care dr. may be your best advocate having built a history with him already of your medication use. Knoledge of your history is going to be very crutial here unfortunatly.
Again...sorry you are in so much pain, and it is not being addressed appropriately.

No, no surgery for me. My version of TOS is pretty mild now.

I've been around TOS forums since 04 and read a lot of pros & cons on surgery outcomes.

I try to point new members toward the sticky threads to learn as much as they can and reading of older posts from those that don't or can't post anymore to learn both sides of it.

The forum search tool is great for finding posts with surgery topics from the past. We have a poll on surgery outcomes in the useful sticky thread.
http://neurotalk.psychcentral.com/post85992-17.html


You've had so many surgeries already , I'm afraid there could be scar tissue building up and that can cause a whole other can of worms - something else to search the forums here for.
also - sticky tissues , adhesions