Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-29-2010, 05:32 PM #1
sswang00 sswang00 is offline
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Join Date: Dec 2010
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10 yr Member
sswang00 sswang00 is offline
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Join Date: Dec 2010
Posts: 3
10 yr Member
Unhappy Terrible symptoms but no definitive diagnosis... Do I have TOS? Frustrated &depressed

Hello everybody. I have a long messy story so please bear with me.

Over a year ago: I had chronic shoulder pain over a year ago and found out I had impingement of my rotator cuff muscle. After months of Physical Therapy and rest the pain remained.
My pain was only present in my shoulder at my rotator cuff and only present if I tried to exercise or use my shoulder.

5 months ago (Aug 10th): After a year of rest and some physical therapy, I finally had surgery in my shoulder. My ortho did a subacromial decompression and distal clavicle excision. A bony spur was removed. He said The tear in the supraspinatus was minor and didn't require surgical repair. He also mentioned very minor damage in my labrum that didn't require repair but just needed to be "cleaned up." He says everything went perfectly and the surgery was a success.

I have been following through with physical therapy 3x a week and am doing everything right. But about a month after surgery, I started having a burning/inflamed feeling on the lateral side of my neck. This was soon accompanied by tingling pain in my arms (especially forearm and index finger)
I NEVER had these symptoms before my surgery. Nothing even remotely close to this

The RC area itself hurts occasionally, but I am moreso experiencing the tingling pain in my lower arm/forarm and really bad inflammation on my neck.
(all symptoms are worst the day after physical therapy)

I spoke with my ortho and he RIGHT AWAY said "This has nothing to do with your surgery....its incidental...You have cervical spinal issues

My ortho said to take the conservative route and have physical therapy/traction therapy done. Im worried and also confused as to why this is happening right after my subacromial decompression surgery.
I followed my ortho's advice and had cervical traction done and continued with physical therapy

The most frustrating part for me is the fact that I can't diagnose my problem.
My Ortho thinks its something spine related. One PT thinks its scar tissue after surgery and overall weakness of scapular stabilizers (even though i have fantastic ROM!)...my newest PT thinks some of my muscles are overcompensating because of overall weakness, and perhaps the muscles are impinging on my nerves?...

It has been 5 months since my surgery and Im still having these terrible smptoms all on my right side (same side as surgery):
-Pain in my shoulder
-Tingling pain in my elbow, forearm, and even fingers
-Arm feels like it has poor circulation
-Neck feels inflamed/painful on the right side
**All symptoms are worse the days after physical therapy**

I have been to my ortho, received a cortisone injection, tried cervical traction, active release therapy, and been to 3 physical therapists.
After reading about Thoracic outlet syndrome, I am starting to believe this might have something to do with it.

At this point I am extremely frustrated and depressed. I just want to know exactly what is wrong so I can pinpoint the problem and try to take care of it properly...
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