Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-27-2007, 01:52 PM #11
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Hi Roz, the adrenal failr comes from too much steroid being put into the body. The shots while in medical distance ok in a serise, his own adrenalyn gland stopped producing the ody's natural steroid.

Another thing to is likey some of the anesthsia may have reacted with high acid reflux. Hard to pin point which one, but he gets a mess.

The scariest thing was sending him home nearly comatose. They wanted the bed and basically wheeled him out to the car and dumped him in at our own risk to take him home.
The medicine they gave him for the extended hiccups treatment after several attempts at other meds was an IV bag of thorazine....A side effect is coma, and raised prolactin levels.

With a history of pituatary tumor his prolactin levels are watched closley, why raise them with a medication?
He is still fighting off the hiccups and reflux pain, he is filled with fluid, and chest pain, muscular/skeletal.

With TOS having the hiccups hard ones, for 12 hours caused a real flare and pain.
I hope everyday for the turn around day that the symptoms subside.
Di
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Old 02-27-2007, 04:21 PM #12
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Thinking of you and family today.
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Old 02-27-2007, 04:28 PM #13
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Di, so sorry for more problems...may God be with you nd son...
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Old 02-27-2007, 08:49 PM #14
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DiMarie,

Lady you are incredible, never miss a beat and handle all of this yourself. You are so strong I want to be like you. I could never deal with
all the responsibilities you have and still keep it together.
You are always first and foremost on my prayer list and not a day
goes by that I don't think of you and wonder how you are doing.
I hope your son is doing better by now.
Much love and prayers, G-mom2
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Old 02-27-2007, 10:51 PM #15
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((((((Di)))))),

OMG!! I just this minute saw this.

I wish I lived closer -- just so I could give you a hug and a shoulder and some HELP.

I'm not trying to second-guess the doctors (OK, I am) -- but 3 steroid injections in just weeks?? I've been told that you should only have 3 PER YEAR. I've also been told that damn stuff can blow out your hips. I really have to be wondering what they were thinking, especially since this has happened before.

I'd like to just get all the damn bean-counters together in one room and start punching. What are they thinking

After I had my gall bladder surgery, I got a choking fit (always do from the anesthetic) -- ripped out all the stitches on one of the incisions. They actually sent me home with a sanitary napkin on my abdomen. I called the doctor and he told me to come back in -- how the heck am I supposed to do that -- hop on the subway when I'm bleeding like a stuck pig and I'm still under the influence of the anesthetic

This makes me so angry. I know they need/want the beds, but, sometimes you've got to use your brains.

If I were you, I'd have a little talk with the head of the hospital followed up by a written documentation of the facts.

I'm glad he's finally waking up. I pray that he gets past the pain and all the other medical problems.

There's too much stress in your family. Hold hands in a real quiet room and feel the love and the healing prayers that we're all sending to you and your family. Bless you all. Hugs and love.

Barb
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Old 02-28-2007, 01:05 AM #16
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Hi Di,
You sure have your plate full.
It sounds like addison;s to me.
I have adrenal fatigue. Had cortisol levels checked several times/day.

One of my best friends has this and takes meds, suddenly has a crisis and ends up in the ER. Very scarey.

God has given you an extra dose of compassion.
Hope your son is doing better and thngs stablize for awhile but it
sounds like a long road for him and his son.

Oh, and I have another friend who has TOS and RSD from a car accident.
She had a bad lawyer and settled for $5,000.
She tried to re-open the case and they said no.

You are so saavy you'll prevail in the end.
You and your family continue to have my prayers

Hope
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Old 02-28-2007, 01:36 AM #17
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Oh Dii,

How unbearble the whole incident must have been - and should NOT have been!! If he reated that badly to steroids, how could they presume he was going to be fime with the mixture of drugs they had just filled him with?
My husband was in the ER, then admitted shortly after Christmas, due to an extremely rapid heartbeat (185 beats per minute), they believe it was his acid reflux disease that caused an "electrical system" malfunction that affected his heart rate, the drug that should have lowered it did not work. Luckily it came down on it's own sometime during the night. I cannot imagine how upset I would be if they had just given him the med and sent him home again!

Did they do anything for the acid reflux? Taking care of that may help with the hiccups - it had to hurt like heck to have them for so long! Did your son forget what happened the last time he had steroids, or did he not connect the two? I'm sure his wife will remember after this!

I'm so sorry for the worry and fear, and sorry your son was treated so carelessly. I think talking to the hospital head or as close as you can get is a good idea - you deserve to express your views on their poor treatment and what could have occurred, if this is status quo they are just leaving themselves wide open for a tragedy to happen and lawsuits to be filed.

Get some good snuggle time in with that grandson tomorrow, ok? There's nothing quite like a baby ...

You're always in my thoughts,
beth
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Old 03-01-2007, 01:59 PM #18
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Default Hi Di,

I am so sorry that you are going through this, so sorry your son is suffering.
I hope he's situation resolves it's self soon. Please know that you are in my prayers also.

DH went to the hospital via ambulance in July 2005 hallucinating and in severe, knock him to his knees pain. He was also having trouble breathing. They hooked him up to all the monitors. He kept falling asleep and the O2 alarm wold go off. His O2 sat.s were at 72 and they kept him in the E.R. for several hours before trying to send him home. I refused stating I was unable to care for him with my TOS.

I argued with the E.R. Dr. until someone called the acting Chief of the hospital. He authorized DH's admitance and they kept him. DH ended up staying in the hospital through September, between having his interthecal pain pump surgery and Hyperbaric Oxygen treatments.

I would encourage you to put your foot down and say No!! next time. Threaten to sue or what ever it takes.

Recently in my home town a guy I went to school with was sick with flu like symptoms. His Father took him in to our local hospital and they monitored him for several hours and sent him home even though his Dad and sister were protesting strongly. He died in his sleep that night.

I have had to learn to be adamant, which is not my nature. But after all we have been through, I have learned when to fight.

I know you are a fighter too Hon, and I know how much you have had to fight with them in the past. Sometimes they just wear you down. I just hope that if they do try to send him home, or not admit him in the future, you will be insistant. You are the one who knows your son best. You should be the final voice in deciding what he needs.

God Bless Dear Friend,

Grom
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Old 03-01-2007, 10:02 PM #19
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Default Grom you right

Grom that is what is wrong with the system, they don;t listen. Last time I had no problem with his admission, he was in for at least 3 days then for test and treatment. His PCP was furious he had not been admitted as the coma type state from sedating medication was reason enough, let alone adrenal gland shut down.

What PO'd me was I THOUGHT THE DOC GOT IT!
The doctor and I spoke when I could not wake my son. I discussed with him my loss last month from medication interaction and I was scred to death to take son home like that, also taht after an hour awake they seemt o come bamk, I did not want to have to have a second trip to ER.
HE REASSURED ME that the nures would not push him to discharge. Yet less then an hour later that is what he did and the nurses were annoyed as they could not wake him uo and had to send her home with the baby in tow.

He stood there and mislead me! He should have made arrangement to admit at that point, even if it was until evening, this was already nnon from midnight,
I am not going to let doc shoot him up with that much steroids again ever!
Thanks everyone for your support and even the great articles that were sent me. they were so informative.
Di
PS: Will my life ever be without crisis going on?
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Old 03-05-2007, 12:23 AM #20
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Di, It seems it is one thing after another happening. I hope it quiets down soon as spring arrives. When your family is ill, and especially if they don't have good medical care. you have a hard time resting and relaxing. It is always on your mind. Doctors treat things too lightly now a days. I think one day the doctors were all told that if they remain calm all the patients would go home and ignore their illnesses. But that is not the way life happens. Hope
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