Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-05-2011, 09:40 PM #1
MaddyB MaddyB is offline
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Blank What med's. are TOSer's taking?

Hi,

I'm asking as I was recently admonished for the amount I take by a new treating physician. I am taking Neurontin, 2400 mg a day, Cymbalta, 90 mg a day, 30 mg. of morphine twice a day, Norco, 10/325 4 times a day, and lastly, I have 4 mg. dilaudid for break thru pain that I may not take for weeks at a time and then may take 1 a day for 4 days in a row.

Please share so I can see if I am really that far out of line.

Thanks!

Last edited by MaddyB; 01-05-2011 at 09:42 PM. Reason: to clarify doses
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Old 01-10-2011, 04:14 AM #2
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Does it improve the quality of your life, than can say you are not out of line... I do not know how long you have had this nasty disorder, but we all require differenet meds, dosages etc... It is not as though you are looking for a euphoria, just A LIFE, which is a hard thing to come by!
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Old 01-10-2011, 01:24 PM #3
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I've read that some can metabolize meds faster than others - so those would need more to cover the pain better.
I don't know if there are tests to prove that or not..

Do you feel like you are on an even keel with these med dosages?
Is your pain under control fairly well with these meds?
Is your blood work being checked often?

Have you looked tall these up to read more about them & any side effects?
http://www.drugs.com/condition/pain.html


What kind of pain do you have? mainly nerve, muscles?
Are you having any PT or other therapies also?
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Old 01-13-2011, 09:08 PM #4
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Default Thank you DDayMMB and Jo*mar

Yes, it improves the quality of my life. With out it, I don't know how I'd function, and I don't function that well as it is!

Also, sorry for the delay in responding, but I've been sick with sinus problems, on top of the usual!

I have so many issues from the TOS. I've had it about 8 years now, am bi-lateral. I also have jaw pain, stabbing pain in my L eye(surgery side) that my TOS Dr. says is from the TOS.

I have nerve and muscle pain. Sometimes the pain in my chest/neck is so intense, I'd like to be shot! But mostly, I deal with head aches (daily), muscle pain, bone like pain, and the electric shocks in my elbows, wrists and hands.

I do have regular blood work and the results have been fine.

If you can believe it, my Dr. actually said he's more concerned about himself and his license than me! Unfortunately, I'm stuck with him until my W.C. case is settled. That won't come soon enough for me!

Thanks Jo*mar for the sites. I'll ck. them out!

Last edited by MaddyB; 01-13-2011 at 09:09 PM. Reason: typos I missed!
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Old 01-14-2011, 01:41 AM #5
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what an inconsiderate A**hole, than again most can not relate to what pain is! My Dr is retiereing and I am afraid of future pain management...I had a pump put in, though have it only dripping minimal,found can manage my pain better on a as need basis with orals. Adter 6 years can read my body pretty good and found prvention of a flare is easier to take care of and by this time can usually read into when one is approaching, granted I still require a maintance dose, though all-in-all end up taking a lot less this way! Can deinately the coldcauese a major problem in the day-to-dat battle, but keep plugging on...my best to you Mark
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Old 01-16-2011, 03:21 PM #6
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Default Thanks Mark!

Quote:
Originally Posted by DDayMBB View Post
what an inconsiderate A**hole, than again most can not relate to what pain is! My Dr is retiereing and I am afraid of future pain management...I had a pump put in, though have it only dripping minimal,found can manage my pain better on a as need basis with orals. Adter 6 years can read my body pretty good and found prvention of a flare is easier to take care of and by this time can usually read into when one is approaching, granted I still require a maintance dose, though all-in-all end up taking a lot less this way! Can deinately the coldcauese a major problem in the day-to-dat battle, but keep plugging on...my best to you Mark
I appreciate your kind words as well as your info. about dealing with this monster of a disease/syndrome!

Yes, cold weather doesn't help, and I feel like I'm doing well by not asking for an increase in my med.s! Instead, I'm being chastised! YES! A**hole fits this guy perfectly! GRRRRrrrrrRRRR!

Thanks again!
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Old 02-15-2011, 07:54 PM #7
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I am not TOS, but RSI -

I was given Effexor today to start for pain and tramadol for break through pain. I dont have depression issues - was/am trying to find other folks with RSI issues/similar to see how they liked this med and if they felt it really helped any? I see alot of folks that take this gain weight - and trust me I dont need more weight on me... so just curious. I was told at a low dose I shouldnt gain. Dont see too many RSI folks when I google it take it..... so thought I would ask here since this board has been a help in the past - and here .. a post on drugs.. thought I would try. Thanks
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Old 02-15-2011, 09:08 PM #8
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Default Thanks!

Thanks so much everyone for your answers! I really appreciate your openness and willingness to help me out! It's a difficult subject, and this is the only place I know of to turn to when you have a issue like this one.

I feel so much better hearing from you all.

Thanks again,

Maddy
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