Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-22-2011, 03:08 AM #1
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Heart Catch up for dear friends

Although I lurk, it has been complicated lately. I did want to let everyone know that I am around. I miss chats, the long time friends...making new ones.

The most difficult issues are trying to work with my lumbar herniation's, ostephytes, and TOS of the butt I call it. Instead of just my neck and arms, it is going down the legs too. All hunched over. I need to get back into aqua therapy and massages.

I have to crawl out of the car and go on the insurance claims most of the time. I try to act normal when people see me.
A few weeks ago I had tractor trailer fuel tank damage and had to lay on my back taking the photos of the fuel straps. I laid on a large cardboard they put down...then waited for dh to come in from his smoke to pull me out on the cardboard.

I opened my own PI business too for the boys to carry on later. I mostly advocate for Mom's that were in abusive relationships and are trying to regain custody of the children. With no home, the "father" retained custody even though there was abuse????

I know De would be so proud that I help so many kids. I do monitored exchanges and visitations too.

Our youngest, is now 15, she is my blessing. I remember on the old forum she never slept at night, Jean told me as soon as she is a teenager she will; and she does. My grandson now 5 1/2. He loves his Mamma, my ds is rearing him on his own...dil is living apart.

We miss our Angel so much, I miss that my grandson will never remember her. He goes with me to the cemetery, and takes care of the flowers and things we have there. He calls her his Aunt Sissy. My younger dd still can not visit.

Her cats are still here with me. The oldest she had at home when she was 14 passed away last year and that was difficult.

I amwaiting any day for a decision in litigation in De's estate and hope that justice prevails. My heart just aches missing her and wanting something positive to avail it.
I keep you all in my heart and prayers.
Love
Di
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"Thanks for this!" says:
astern (02-22-2011), Jomar (02-22-2011), Koala77 (02-22-2011), mspennyloafer (02-23-2011), thursday (02-28-2011)

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Old 02-22-2011, 03:35 AM #2
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Thinking of you and sending hugs.
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Old 02-23-2011, 07:31 AM #3
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Default Proud too

I am proud of you too. Hang in there.
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Old 02-23-2011, 11:52 PM #4
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Heart

Oh Tied it is good to read you, i miss reading how the treatments are going and how you are feeling. Super {{{{HUGS}}}}
I have been dropping by looking for the gang, it breaks my heart to find so many new friends with TOS.

Today we had great news with my son's benign tumors in his brain.
They were pituitary tumors he had for 9 years and were becoming an issue with the optic nerve. Last time he had two instead of the one.
Today he was at Hershey med center for follow up with the neurosurgeon and he came out to speak with him instead of the PA first.

They took his ID and documented it, did some checking and then came into explain that for some unknown medical reason the tumors are gone!

A year ago they were a tad larger, today there is nothing there as if he never had them. They went to radiology to rule out a problem, went to the computer, took 9 years of old mri and over lay.
After the detailed follow up the neuro called home on the way home and stated there is no medical reason that this happened, no medical explanation. The clinical of it all is being documented for case study.

I told my son, his Angel sister and all the prayers are the reason. The doctor wished it was a routine, something he was eating, anything to help other patients.....
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